Skip to main content

A Better Day



Today was another "better" day. He wasn't exhausted all day long. Before CBT we went for a long bike ride. CBT was better today than yesterday. Yesterday they worked him too hard but today was good. Today he talked about how he will bring in a Percy Jackson book as a new challenge, as he has stopped reading because he is afraid that the books gave him panic attacks and/or added to his anxiety. So that will be his challenge, to read them in the safe environment with everyone around and see if he does OK. I'm not sure too much about this one because maybe they did lead to his break down. Who knows. But he also enjoyed reading them and I don't want him to be afraid of reading books. Also he ate a granola bar without spiting any of it out because of the "lump" in his throat. He did well and we went home happy today instead of fried like yesterday.

We picked up his sister from her tutor's house then we went to homeschool park day. They met the kids there who were all spectrumy and lovely and accepting and kind. So Ewen and his sister were happy to hang out with them. They played "lava" where they ran around the tables in the shelter and couldn't touch the ground. The parents were all like...should we be letting them run all over the tables?...oh well they are having fun and no one is getting hurt at this point anyway.

Really all day long he seemed to be pretty even-keel and not anxious and not depressed. It is always a bit harder at night and he had his friend here for a sleepover and so he was angry at me for enforcing the 9:45 lights out bedtime rule. I don't budge with that. 9:45 is late anyway and if there is one thing that needs to be consistent with all of this, it is his bed time.

I am really glad that we have had 3 days that seem to have lots of hints of normalcy and low anxiety levels. I don't know if it is the CBT or the Prozac, but something is bringing his anxiety levels down and allowing him to experience a little bit of fun again. He isn't angry and upset all the time. He is calming down.

Tomorrow DH and I are working and we will be leaving Ewen and his sisters behind with his grandparents.  I think it will be OK but I'm nervous to leave him without a friend to distract him the whole time like when we went away to film a few weeks ago. I'm glad we went to Grandma's yesterday when I left him for half an hour, as a CBT challenge so he can start to feel comfortable there again and not like he is going to have another panic attack.

Last night he woke up and came in our bed. I hope the Prozac isn't waking him up and switching to evening was the right decision.

Comments

Post a Comment

Popular posts from this blog

Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences.  We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back
4 comments
Read more

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal of an
2 comments
Read more

Titrating Prozac (Really Low and Slow)

Ewen is in his bedroom editing an Agario video. Since he is doing video editing I'm calling it a part of homeschool. I also have some work for him to do on the dining room table this afternoon. We have his first acupuncture appointment this afternoon. It is going to cost $90. I'm not sure if it will do anything to help since today was our 2nd day of Prozac and I am sure that meds interfere with natural and holistic treatment. But we will try. Maybe it will help? I'm giving Ewen barely any Prozac this week to start off with. It comes in a liquid and we are supposed to be giving him 1 ML...which apparently is very low. But yesterday I gave him .1 ML, to get his body used to it. And today I gave him a smidge under .2 ML's. There is no reason not to titrate it so low. He is so ultra sensitive that I want to give his body time to get to know the drug before we put it up enough to make a difference. He did so badly on the Lexapro that I think this is the right way t
Post a Comment
Read more