(magnesium B6 chewable, fish oil, broccoli sprout extract, 2mg melatonin, probiotics, 250mg Zithromax, 4ml prozac)
Ewen had a Dr. appt with his pediatrician this past Tuesday. I asked her if we were going to switch up the antibiotics so that Ewen doesn't build up resistance to them and she said that the current science with PANS to keep using what is working. I told her that the 500mg Zithromax was hurting his stomach a lot and so she changed it to 250mg over 2 days taken at dinner time. We are also going to bring his Prozac down to 3ml's if he does OK on the new Zithromax schedule.
Mike was worried about liver damage with prolonged use of Zithromax so she said we should check Ewen's liver function every 6 months. Mike also asked about IVIG and she said that insurance won't pay for it and the nearby University hospital isn't interested in it and doesn't believe in PANS and PANDAS.
Over the past few days it seems like he has been working harder than usual to keep it together, and wanting to zone on screens more. We took his computer away and he actually thanked me for it so no more Agar.io hell. But he likes to watch the Pokemon cartoon on his phone and also play Pokemon Go obsessively. I'm not so worried about it though because it is such a social game. He still says he likes middle school and he told me he likes it better than elementary school. He asked me if I liked middle school better than elementary school and I said, NO! But I'm glad he does. Mike liked middle school too...so I guess some kids actually do. I just want Ewen to be happy.
On a personal note, I went down to 150 mg of Wellbutrin and might go off it because I got a weird buzzing noise in my ear that was awful. I went down int the dosage as soon as I realized what was happening and the awful buzzing only lasted a couple of days. It is all but gone now. If I think about it, it comes back though....like now.
I read that a tinnitis reaction to anxiety/depression meds can damage the ear drum. It was a reminder to me that these medications are not simple and that it is best to be on the lowest doses possible. I will bring the Wellbutrin down to 75 mg asap in a week or two and I will see if I can bring my Prozac dose down too. I have a hard time with TMJ if it too low of a dose so we will see. A few days ago I realize that I was driving without any anxiety at all and it was really nice. That hasn't happened for years.
Ewen had a Dr. appt with his pediatrician this past Tuesday. I asked her if we were going to switch up the antibiotics so that Ewen doesn't build up resistance to them and she said that the current science with PANS to keep using what is working. I told her that the 500mg Zithromax was hurting his stomach a lot and so she changed it to 250mg over 2 days taken at dinner time. We are also going to bring his Prozac down to 3ml's if he does OK on the new Zithromax schedule.
Mike was worried about liver damage with prolonged use of Zithromax so she said we should check Ewen's liver function every 6 months. Mike also asked about IVIG and she said that insurance won't pay for it and the nearby University hospital isn't interested in it and doesn't believe in PANS and PANDAS.
Over the past few days it seems like he has been working harder than usual to keep it together, and wanting to zone on screens more. We took his computer away and he actually thanked me for it so no more Agar.io hell. But he likes to watch the Pokemon cartoon on his phone and also play Pokemon Go obsessively. I'm not so worried about it though because it is such a social game. He still says he likes middle school and he told me he likes it better than elementary school. He asked me if I liked middle school better than elementary school and I said, NO! But I'm glad he does. Mike liked middle school too...so I guess some kids actually do. I just want Ewen to be happy.
On a personal note, I went down to 150 mg of Wellbutrin and might go off it because I got a weird buzzing noise in my ear that was awful. I went down int the dosage as soon as I realized what was happening and the awful buzzing only lasted a couple of days. It is all but gone now. If I think about it, it comes back though....like now.
I read that a tinnitis reaction to anxiety/depression meds can damage the ear drum. It was a reminder to me that these medications are not simple and that it is best to be on the lowest doses possible. I will bring the Wellbutrin down to 75 mg asap in a week or two and I will see if I can bring my Prozac dose down too. I have a hard time with TMJ if it too low of a dose so we will see. A few days ago I realize that I was driving without any anxiety at all and it was really nice. That hasn't happened for years.
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