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Showing posts from 2020

11-Year-Old Daughter Now Struggling

 Now my 11-year-old daughter has PANS. My son, Ewen, who I started this blog about a few years ago is doing great. He still has Zithromax when he has flares but does amazing on Zithromax and is back to baseline while taking that. He's happy and social with lots of friends, and doing very well with his online schooling.  My youngest though, she is 11 and she is suffering badly. This is what I gave her today: Morning Valtrex (for mono.. Epstein Barr) Vitamin C Fish oil lipothiamene Evening Zithromax 250 1/2 a Zyrtec 1.5mg melatonin disolvable 7 mg fluoxetine (She was on 5 and I'm working on moving her up to 10mg) She had been taking another antibiotic, I'm blanking on the name. It wasn't augmentin because she is allergic to that. Maybe Cefalexin? But anyway, I took her off that and put her back on Zithromax tonight because she is tanking and I'm scared. I'll call her pediatrician tomorrow and make sure she is on board with the switch. My DD is feeling stuck and wa

Summer Between 9th and 10th Grade

Well Ewen was off all meds since Christmas...no Zithromax or Prozac. I gave him vitamins and more recently I started giving him a vitamin by Xymogen called, Mood Food. It has GABA and 5HTP in it, and some B vitamins. I also give him B1 (Thiamine) and probiotics. Just a few days ago he started back on Zithromax again. He has been super angry and unusual. It reminded me of the week before he started his panic attacks when he was 10. So his pediatrician said to do another round and see if that helped. It did and he is less angry these past two days and even apologized out of the blue for being so angry. He realized he needed to take it and I had him talk to is pediatrician on the phone about it. We did a phone appointment because of COVID. A few months ago he has blood work done and he still has low immune levels. I was disappointed in that finding as I had hoped that puberty got rid of his autoimmune issues. It is very strange being a mom to a 15-year-old. Ewen basically has decide