10-Year-Old with Panic (PANS)

(1000mg b12 dissolve tablets from Trader Joes, 4ml liquid prozac,  1mg melatonin) Today was so hectic I wasn't very good about giving Ewen all his stuff...fish oil, probiotics, magnesium etc. But he went to sleep fairly well with no fuss and not even really any huffing.  He never swishes saliva anymore when he goes to sleep thank goodness. He seems to be doing OK, a little bit dissatisfied with "boring" things and wanting lots of breaks (he didn't go to band camp today). But he is in a good place I think. Sunday he will start his once a week....500 mg zithromax. I have been tired...Prozac makes me very tired and I haven't been very good at getting up in the morning...I half love lounging for hours and half hate it. But something that I did today which was new, was float on my back, by myself in my parent's pool and look  up at the sky and the trees. The sky was so blue and the very tall tree branches were swaying in the breeze and the green was as saturate

(3.8ml Prozac, 250 mg Zithromax probiotics) So Ewen mostly huffs when he plays video games, but doesn't really otherwise. Tonight he went to sleep fairly calmly without tics bothering him a lot. He still points his toe and straightens his leg and bounces it up and down a bit. He still flexes his muscles a bit and huffs a bit. But it is mild and then he drops off asleep. He didn't even have a melatonin tonight. I sat in the beanbag in his room and played the game, Clash Royale, the game I learned when he was sick, so that I could have something to talk to him about.  Now he barely plays it anymore and I'm addicted to it. I sat there until he was asleep. I don't know why the kids want me to watch over them as they fall asleep. My youngest is 7 and still wants to be hugged to sleep. After dealing with Ewen's anxiety and depression, I don't say no to them anymore when they ask for my arms. I hug my little girl to sleep at night and sit in the bean bag in Ewen'

 Wednesday June 22nd 2016 3.8 ml prozac, probiotics, 250ml Zithromax, melatonin He was a huffy today while playing video games but not huffy otherwise. Tonight he got twitchy and a bit huffy going to sleep but not too bad. 

(Prozac 3.8 ml,  Zithromax 250mg, probiotics, melatonin 1mg) Mike didn't want to give Ewen his zithromax yesterday because he wants to back off on how much he is getting...but he starting huffing again last night and was huffing again today. So I gave him the 250 mg today and we will see if he is huffing in the morning or not. That will suck though if he has to have the full 250 every day to keep the PANS at bay. I went to the dr today because I have a swollen lymph node in the back of my neck that has been there for kind of a long time. I told her about what happened with Ewen and she had never heard of PANS or PANDAS. I was surprised that she didn't know anything about it. She said that there were two types of mycoplasma titers...one of them showed that there has been an infection in the past and one of them shows that the infection has been recent. If it shows it was in the past then it doesn't matter she said. I wonder which one Ewen had. I will ask his pediatrician

(4ml prozac, probiotics, 1/2 magnesium, 2 drops of D3 250mg of zithromax) Ewen has been going to soccer camp this week and he likes it. He has been a bit more twitchy and I am going to give him a Zithromax today. He hasn't had one since Saturday because I was going to do what he Dr said and just give him one a week at 500mg. But when he doesn't have one for a couple of days he gets more and more twitchy. He has a weird nose tic now too where he scrunches it a lot. I want to come down on his prozac since that has been linked to facial tics but he is happy and I want that to stay. I am also taking Prozac and I really like feeling calm about stuff instead of worried about things all the time. But it affects my motivation too. I am loving this summer. We can all get up at whatever time we want to. We took Ewen a bit late to camp this morning. I'm not going to worry about rules or responsibilities...just relaxation and fun for a while, especially since we can't affor

4ml prozac, probiotics, 1/2 a magnesium Today Ewen had his CBT/therapy appointment with Kari. She was happy to hear all the stuff he is going to do this summer starting with soccer camp next week, then band camp the following week and gaming camp after that. Summer is very expensive when you have 3 kids. My oldest will be doing a girl rock band camp and my youngest is too shy to do any camps. Ewen has been huffing a bit today but not a lot. He huffs more at night when he is tired. He is teaching Magic Cards to his older sister with autism. I think this could be her ticket to being a bit social. She won't have to talk to people, just play the game if she learns Magic. So even though all she wants to do is play the Sims all the time, I've asked her to take 10 minutes a day to play and learn Magic. She is agreeing to do so and I hear her asking Ewen questions and actually doing it. So I have been taking Prozac too and I can see why Ewen wants to stretch his muscles a lot and

4ml Prozac, probiotics and half a magnesium The Magnesium seems to really help. Yesterday was an amazing day. Ewen came with us to his old school where his little sister was having a smoothie end of 1st grade party with her class. And he said, "I'm going to see my old class". I came with him to the other building and went in to ask his old teacher if it was alright first. I explained about Owen's PANS and she said that her daughter has PANDAS and took antibiotics for a year. I couldn't believe it. She said that they were going to have a last day of school party and he could join them for that and he could use her phone to call me when he wanted to go home. So he went in the room and he class all exclaimed with happiness and one boy with autism who loves Ewen got up and hugged him. I thanked the teacher and Ewen gave me a happy wave goodbye and I left joyously that he was going to have some closure with his class that he left so abruptly at Christmas time and

4ml prozac, 1/2 magnesium, probiotics, advil for his sore throat but his huffing completely stopped after the advil. There is a tropical storm moving through and I didn't buy bottled water at the grocery store today because heck, it wasn't a hurricane or anything. But now our tap water is brown so we are drinking the water that I filled the Brita Filter with earlier today and no one had baths tonight. It is raining and raining in torrents. We had to move the cars because the street is flooded. My youngest is still in school since she goes to a public school. Thursday is her last day and I am hanging on by my fingernails till then. Oh to be able to all sleep in for a few mornings. That will be so deluxe. If it is raining like this tomorrow morning it will be oh so hard to get out of bed. But her class is having a smoothie party tomorrow so we can't be late for that!! The house is a mess because I have to finish a video and I am so uninspired by it that it is dragging o