Skip to main content

Things OK Again

It seems that the best way back to normalcy is large doses of Zithromax. Ewen is happy and doing well again.

He is playing soccer and doing well in school. He still goes to see his therapist once a month and they talk about his anxiety. He takes his Rubix cubes with him and solves them while they talk. She said that is a much better way for  him to channel his need to always be doing something than squirming off the couch onto a heap on the floor like he did a year ago.

So we are learning to navigate the regressions and it is good to know that there is a way back from them.

Comments

Popular posts from this blog

Friday, Day 5 Antibiotics - Another Good "Really Fun" Day

(7:45am probiotics, 4pm 4ml Prozac, 1 Zithromax, 8pm Clonodine-a very tiny 1/4, and probiotics) This morning we left the house early so we could go to Starbucks and get some hot chocolate before school. Ewen's carpool buddy liked that too. Ewen was in good spirits, then when we got to school I walked in the classroom with him to help him carry his stuff. One of his classmates said, "Ewen, do you have your book report?" Ewen: "When is is due?" Classmate: "Today!" So I went to his teacher and apologized that he hadn't done his book report and that he would do it this weekend. I thought about how we have a wedding all day on Saturday and he has an out of town game on Saturday, then another out of town game on Sunday. But I told her we would get it done. She said he could turn it in next Friday. He will have to get up in front of the class and present it so it is a big deal book report. He has been so spacy, filled with procrastination and avoi...

Out of the Hole

( 4ml Prozac, fish oil, 1/2 magnesium, probiotics, 1mg melatonin) Today Ewen went to a birthday party a couple of hours from home and had a lot of fun. He hung out with his dad a lot today which is what he used to do before he got sick. When he got sick he completely switched from Mike to needing me 24/7. He was not interested in hanging out with Mike. Daddy was all about watching soccer, playing soccer, enjoying everything that Ewen was good at and going out and having fun. Mommy was there to make sure he was feeling OK. So he switched from Mike to me. I realized this morning as Mike got up early to get Ewen's soccer stuff together and go to the store to get a present for the party, that he was taking over his old role as Ewen's care taker. I like that because Ewen has to be so active all the time that I don't have time to spend with the girls. So if Mike focusses on Ewen with his crazy social life and activities, I can focus on the girls and everything else. It was re...

Still Chugging Along

It has been almost a month now since the terrible effects of the prednisone.   This morning I gave 50 mg hydroxyzine and 500mg of phenibut and she still said she wasn't feeling great at 11:30am. So I gave her 3 droppers of Valerian Calm, which seems to offer a small boost of happiness sometimes.   I stopped her 5HTP and replaced it with 10mg of fluoxatine. But yesterday she said she was having a hard time peeing. So if that happens again we will have to re-evaluate.   After she is comfortable on an SSRI I want to start the minocycline antibiotic, but I don't want to do that until I get her SSRI support up incase the antibiotic makes her feel worse I read minocylcine can have negative psychiatric effects for some people). I have maxed out her supports with the phenibut and the hydroxyzine and have nothing left to give if the minocycline does something weird neurological too.  So to support myself, I took 20mg of fluoxatine (prozac) last night and feel w...