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Good News!

Ewen is now 13.5 years-old and symptom free. He is has been off the 500mg-a-day Zithromax for about 3 months now, and we are slowly taking him off the Clonidine. We have pulled his Prozac dose down to 10mg and may keep it there for a while.

How it happened... Well, about 3 months ago both Ewen and his 9-year-old sister got a very nasty stomach virus. After they recovered, although his sister seemed to be set back with her autoimmune disorder issues, Ewen was suddenly symptom free of PANS and ADD. So I thought, maybe his gut needed to be cleared out which is what the virus did, and maybe his gut didn't need anymore antibiotics. So we did something kind of drastic. We stopped sugar completely. We stopped the antibiotics and we upped the Minelinx probiotics to two a day. This was all with the guidance of his pediatrician.

It worked. He is good about staying away from sugar, although it was outrageously hard at first (with lots of arguments happening) because he was extremely addicted. But with the help of his friends telling him he was much more pleasant to deal with off sugar, he came around and now tries to stay away from it. We have made cakes with Swerve sweetener and so he hasn't gone without sweet deserts. That helps. So I can't even express how amazing it is to have him back completely. 

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Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal o...