Skip to main content

Still Chugging Along

It has been almost a month now since the terrible effects of the prednisone. 

 This morning I gave 50 mg hydroxyzine and 500mg of phenibut and she still said she wasn't feeling great at 11:30am. So I gave her 3 droppers of Valerian Calm, which seems to offer a small boost of happiness sometimes. 

 I stopped her 5HTP and replaced it with 10mg of fluoxatine. But yesterday she said she was having a hard time peeing. So if that happens again we will have to re-evaluate. 

 After she is comfortable on an SSRI I want to start the minocycline antibiotic, but I don't want to do that until I get her SSRI support up incase the antibiotic makes her feel worse I read minocylcine can have negative psychiatric effects for some people). I have maxed out her supports with the phenibut and the hydroxyzine and have nothing left to give if the minocycline does something weird neurological too. 

So to support myself, I took 20mg of fluoxatine (prozac) last night and feel weird today. But I also took 50mg of hydroxyzine about half an hour ago and am starting to feel more normal. This morning I was able to get out of bed and do all the meds and make breakfast for the whole family. It is hard now with all the food restrictoins. I made pancakes out of GF flour, a mushed banana, salt and Ripple milk and water. They were OK, Everyone ate them. I made it a priority to sit down with a cup of camomile tea and eat my pancakes for a few minutes. I have lost so much weight through this stress. It is hard to put food in my mouth but I do it becuase I know I need to. I also have to be GFCF becuase of some thyroid bs I just found out about...not a bit deal, nothing urgent but a bit headed to hashimoto or something...but can be reveresed by GFCF. I also can't eat eggs. 

 It is strange how My oldest is so different from her brother. She can't take clonidine or propranolol as a support for her anxiety, without getting terribly depressed. So that eliminates two supports that are not addictive. I'm the same way as her though. Thank goodness for hydroxyzine. I'm sure it has something horrible about it too... but right now it is a help. 
 1. keep putting up fluoxatine but be vigilant to see if it causes her to not be able to pee 
2. Keep doing the supports, knowing that when the SSRI is effective enough we can slowly wean off the Phenibut 
3. After she is stable, try the minocyclene again. 
4. Hopefully a doctor will order the test for her to see what is the best SSRI for her brain chemistry. There is a test https://genesight.com that lets you know what the righ SSRI is for you so you don't have to go through the agony of trying the wrong ones first. 

 So that is where we are now. I don't know if she is a bit worse today and yesterday because I put her Prozac up, or if becasue yesterdy I only did 25 mg hydroxyzene in the morning and that threw her off?? Anyway, this morning we went back to the normal regiment and lets hope this afternoon we can wait until 4pm for the next dose.

She isn't doing well, even with her supports maxed out. I'll take her some camomile tea. She sits on her bed and plays the Sims. If I mention school works she has a panic attack.

Comments

Post a Comment

Popular posts from this blog

Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences.  We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back
4 comments
Read more

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal of an
2 comments
Read more

Positive Post

(4.5 ml Prozac, 5:30 pm...due to soccer game and 1/4 Clonidine 8:30 pm due to soccer game) It is 1:10 am and I just got finished watching The Shawshank Redemption on Netflix, on my iPhone 6+.  I used my 7-year-old orange and pink headphones that don't go very loud on purpose as they are made for children. So I had it turned up all the way for a normal volume. The last time I saw that movie was when I was in my early 20's, in my apartment near by the Art School of my University. I watched it with my old boyfriend. It's funny the things you remember. It sounds like Mike is up. He fell asleep on the couch tonight in front of the TV while I was putting the kids to bed. It took a while to get Ewen to sleep. I probably need to start giving Ewen 1/2 a Clonidine soon, which is actually what his Dr. prescribed. He had a good weekend. His huffing is still there but not as intense or as often. His other tics seem to be gone except for a night when he still swishes saliva around
Post a Comment
Read more