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A Little Catch Up

4ml prozac, probiotics, melatonin, magnesium, D3 oil It has been a long time since I posted. Ewen is still doing well and seems to regress a bit the last day or two before he takes his antibiotics again. He still takes 500 Zithromax once a week. We tried breaking it up into 250mg over 2 days but that didn't work for him at all, he got anxious again and even got some tics back. He is still doing well in middle school although he is getting a B in math which is weird. He is in a grade ahead with math...in the advanced 7th grade math class. But it is still strange he isn't getting an A. He is getting an A in all his other classes though. The only reason he has a B is because he doesn't go back and check his work before he turns in a math test and makes dumb little mistakes that could have easily been caught with a check-over. But I don't want him to become like the overachiever on the Breakfast Club so I just say, a B is good too...but check your tests before you turn ...

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal o...

I Wrote a Letter to the Chair of The Pediatric ER We Took Ewen To When This All Started:

Message: Dear Dr. ...... In December 2015, I believed it was  December 22nd , my husband and I brought our 10-year-old son, Ewen, into the emergency room at ...... Pediatrics. We explained in triage that he was having panic attacks back to back for the past 3 hours and now he was saying that he wanted to die. Triage admitted him and then he was given a room. By the time a Dr. came in, Ewen was asleep. My husband, Mike, and I were beside ourselves with worry and shock. Ewen had always been our confident, popular kid. He was on the Gold travel soccer team, made straight A's in school and was a source of great joy in our family. He had always had an obvious love for life. He was the kid we did not have to worry about. But suddenly, late in December he had his first panic attack while playing his trumpet in a band concert. The next day I was called to pick him up from school because he didn't feel well and on the way back to the house he said he thought he had been bitten by a tara...

Check Up Appt.

(magnesium B6 chewable, fish oil, broccoli sprout extract, 2mg melatonin, probiotics, 250mg Zithromax, 4ml prozac) Ewen had a Dr. appt with his pediatrician this past Tuesday. I asked her if we were going to switch up the antibiotics so that Ewen doesn't build up resistance to them and she said that the current science with PANS to keep using what is working. I told her that the 500mg Zithromax was hurting his stomach a lot and so she changed it to 250mg over 2 days taken at dinner time. We are also going to bring his Prozac down to 3ml's if he does OK on the new Zithromax schedule. Mike was worried about liver damage with prolonged use of Zithromax so she said we should check Ewen's liver function every 6 months. Mike also asked about IVIG and she said that insurance won't pay for it and the nearby University hospital isn't interested in it and doesn't believe in PANS and PANDAS. Over the past few days it seems like he has been working harder than usual ...

Grateful

Prozac 4ml's Today Mike and I were talking about how Ewen has his happy glow back again. It is amazing to see. I wish I could have known at Christmas that we would get him back. I can't even describe how grateful I feel.

Update

Update (4ML Prozac, fish oil, 1/2 magnesium, melatonin, probiotics) Middle school is going well.  Ewen isn't too stressed out by it and is actually enjoying it. He seems completely back to normal these days except for he is very spacey. That is the one thing that hasn't been resolved with the antibiotics. I wonder if it is from the Prozac? I love that his school posts every homework assignment online and I get emails about it so I can make sure he isn't missing anything. He is in the gifted, 7th grade math class and said he loves it. He's ridden his bike to school a few times but they don't have lockers at his school so his back pack has become too heavy for riding. Mike fitted a basket on to the back of his bike today so Ewen will be able to ride his bike to school again. I'm feeling much better. I'm taking 20mg of Prozac and 300mg of Wellbutrin and 10 mg of Buspar (which is barely any).  My psychiatrist said that she wants me off everything in a ...

First Day of Middle School

(4ml prozac, fish oil, probiotics, 1/2 a magnesium, 1mg melatonin) The last post I was so happy about how well Ewen was doing and I hadn't give him his antibiotics in 2 weeks. The next day he told me he was getting some of his symptoms back, such as anxiety and trouble with eating. I gave him his 500mg of Zithromax that night and two days later I asked if he was OK now after there antibiotics and he said, yes. That made me realize once again that these antibiotics really are helping and he really does have PANS and he really does fit the symptoms. I am so glad that there is something out there that can help him, although I feel odd giving him so much Zithromax. I hope it is OK. Today Ewen started middle school!! I can't believe he is a 6th grader now. We also got a puppy. I wanted to get a golden lab since I had one as a child and also because they are often used as therapy dogs for kids with autism and with anxiety. So I figured that would be good for our family. Well Mike...