10-Year-Old with Panic (PANS)

Ewen: 500mg Zithromax 3x a week, less than 1/4 Clonodine, 1.5mg melatonin, Vitamin D3, probiotics, magnesium, fish oil, 16mg Prozac 8-year-old sister: 3mg Zithromax daily, magnesium, half an Oncolplex (broccoli sprouts supplement), 1mg melatonin, magnesium, iron, D3, probiotics 14-year-old sister - 250 mg Zithromax daily, magnesium, Oncolplex, 1.5 mg melatonin, magnesium,  probiotics, D3, fish oil, 20mg Prozac Ewen and his 8 -year-old sister are both doing really well now. My youngest has her energy back, no longer says "I fee bad!" all day long...in fact she never says it at all. She sleeps through the night more often and is much happier. She is still a grump, but in normal portions with lots of happiness and giggles in between the grumps. She is back to some kind of normal. The story here though is my 14-year-daughter with autism. We started out giving her pretty massive doses of Zithromax and it was just too much for her. She got very emotional and exhausted too. ...

Meds Ewen:  before bed: 4.2 ml  Prozac, 500mg Zithromax 3x a week, less than 1/4 Clonidine, 1.5mg melatonin, 3 drops of D3 morning: probiotics 8-year-old sister: 3ml Zithromax, 1mg probiotics, magnesium, 1/2 pill of Oncoplex opened and the powder put in a drink,  1mg melatonin, 3 drops of D3, iron morning: probiotics 14-year-old sister: (As of today)  before bed: 500 mg Zithromax, Prozac 20 mg, Oncoplex (broccoli sprout extract), 5mg Buspar, magnesium, 3 drops of D3, iron morning: probiotics Story Ewen: He's doing OK. He is a bit down right now and "going through the motions". School is almost over and he is feeling the stress of needing to buckle down and get all A's. But he says he likes school. He does best when he takes 500 mg of Zithromax a day, but we only do that when he is having a regression, otherwise it is too much. But I do wonder if it is hurting him to not take the "right" amount of Zithromax to cut out his PANS symptoms of mi...

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences.  We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back...

It seems that the best way back to normalcy is large doses of Zithromax. Ewen is happy and doing well again. He is playing soccer and doing well in school. He still goes to see his therapist once a month and they talk about his anxiety. He takes his Rubix cubes with him and solves them while they talk. She said that is a much better way for  him to channel his need to always be doing something than squirming off the couch onto a heap on the floor like he did a year ago. So we are learning to navigate the regressions and it is good to know that there is a way back from them.

500 mg Augmentan  (antibiotic) and 100mg Diflucan (for yeast). This is for 2 weeks then back to the Zithromax. 1.5mg melatonin, fish oil, probiotics (minelinx) and magnesium with B6 I took Ewen to see Dr. W today and she examined him and saw his decline. She changed his antibiotics for 2 weeks and put him on diflucan since he is craving sugar like a maniac. Last night I was really down, then at 5am, our cat who had disappeared two weeks before, was on our bed. We were overjoyed to have her back and she was so skinny and dehydrated. She drank for ages, then ate for a long time, then drank for a long time again. She is less than 9lbs now the poor little thing. She is doing very well tonight after eating pretty much all day long and drinking and sleeping all day. She is getting her mew back and is being so affectionate and happy. So that helped make the despair dissipate a little. So Ewen went to sleep a little more easily tonight and said he did want the melatonin but not the...

It's happening again. It started a few weeks back and we increased the frequency of the dosage.  Then he got food poisoning 2 weeks ago and went to the ER vomiting blood. He was treated and out the next morning and bounced back quickly and it seemed to even help his PANS. But then it seemed to come back worse and 3 days ago he asked for his clonidine again. He's had it every night and tonight he wanted to take it earlier than our usual medication time, because he wanted something for his anxiety. He told me that trash was bothering him too and told him that his night light might short out and cause a fire. He was so brave when he was vomiting. You wouldn't believe it. But his mental anguish from PANS is worse to him than vomiting blood. I don't think that doctors realize that. Here is this joyful amazing  and brilliant child and he gets tormented by his own brilliant amazing brain. I wish I could just take it form him and bare it myself. I would do anything to eas...

4ml prozac, probiotics, melatonin, magnesium, D3 oil It has been a long time since I posted. Ewen is still doing well and seems to regress a bit the last day or two before he takes his antibiotics again. He still takes 500 Zithromax once a week. We tried breaking it up into 250mg over 2 days but that didn't work for him at all, he got anxious again and even got some tics back. He is still doing well in middle school although he is getting a B in math which is weird. He is in a grade ahead with math...in the advanced 7th grade math class. But it is still strange he isn't getting an A. He is getting an A in all his other classes though. The only reason he has a B is because he doesn't go back and check his work before he turns in a math test and makes dumb little mistakes that could have easily been caught with a check-over. But I don't want him to become like the overachiever on the Breakfast Club so I just say, a B is good too...but check your tests before you turn ...