Skip to main content

Awesome Summer Day, Saturday June 26th

(3.8ml Prozac, 250 mg Zithromax probiotics)

So Ewen mostly huffs when he plays video games, but doesn't really otherwise. Tonight he went to sleep fairly calmly without tics bothering him a lot. He still points his toe and straightens his leg and bounces it up and down a bit. He still flexes his muscles a bit and huffs a bit. But it is mild and then he drops off asleep. He didn't even have a melatonin tonight. I sat in the beanbag in his room and played the game, Clash Royale, the game I learned when he was sick, so that I could have something to talk to him about.  Now he barely plays it anymore and I'm addicted to it. I sat there until he was asleep. I don't know why the kids want me to watch over them as they fall asleep. My youngest is 7 and still wants to be hugged to sleep. After dealing with Ewen's anxiety and depression, I don't say no to them anymore when they ask for my arms. I hug my little girl to sleep at night and sit in the bean bag in Ewen's room while he goes to sleep...because if that keeps them happy and relaxed and safe then I can do it.

Today was such a great day and I found myself feeling happy. I hung out with all 3 kids at my parent's sparkling, immaculate and warm swimming pool, and we had so much fun together. These days it is normal for Ewen to hang out with his sisters at the pool willingly and have fun again, just like before all of this...before he got sick.

I sometimes look at him jumping in the pool and dunking the pool basketball into the floating basket...then diving to the bottom to get rocks and doing flips in the pool, and I remember that it was less than 6 months ago that he thought he was going to drown in the bath.   He was even afraid of the rain.

Things aren't completely perfect now, but they are good and he is happy and I can relax every now and then and enjoy my time with my 3 beautiful children and I also enjoyed laughing and talking with Mike today. I love the summer.

Now I am just a bit worried about my youngest because she often says that she is sad and feels bad. I can't believe I have another one possibly dealing with anxiety and depression at age 7. I will take her to our amazing doctor and see if we can figure something out. I think she also needs some more friends...that will probably help. It is hard being a parent of sensitive kids...and it is also amazing.

-Me.

Comments

Popular posts from this blog

Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences.  We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal of an

Good Day Good Summer - And My Oldest

(Just under 4ml prozac) Ewen has been doing fantastic. He has been hanging out with my sister and her family and talking and engaging with them. He has gone in the pool several times at his own will. He fell asleep on his own tonight and said that he felt rested and happy to fall asleep. I love that. His facial tics ( new nose twitch too) were in full form tonight. But he didn't huff. Maybe he traded the huffing for the nose twitch. My oldest (age 13) is going to a girls indie music camp this week. It is from 9am-5pm and on Monday when I picked her at 5pm up she started sobbing in the car and said she didn't know why. She said she loved it  but it was too long. I guess it was too much because she had to socialize for 8 hours (she has autism) and that was a bit much for her. Then she cried while trying to go to sleep at bed time and cried again at 4am. She was so depressed that I had to sit up with her at 4 and I got out her old baby books like Goodnight Gorilla and Goodnigh