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Today, Tuesday June 21st, Another Good Day

(Prozac 3.8 ml,  Zithromax 250mg, probiotics, melatonin 1mg)

Mike didn't want to give Ewen his zithromax yesterday because he wants to back off on how much he is getting...but he starting huffing again last night and was huffing again today. So I gave him the 250 mg today and we will see if he is huffing in the morning or not. That will suck though if he has to have the full 250 every day to keep the PANS at bay.

I went to the dr today because I have a swollen lymph node in the back of my neck that has been there for kind of a long time. I told her about what happened with Ewen and she had never heard of PANS or PANDAS. I was surprised that she didn't know anything about it. She said that there were two types of mycoplasma titers...one of them showed that there has been an infection in the past and one of them shows that the infection has been recent. If it shows it was in the past then it doesn't matter she said. I wonder which one Ewen had. I will ask his pediatrician next time we go.

I actually asked her to check my titers for mycoplasma since we were already doing blood work and she agreed.

But overall things are really good with Ewen. His tics are minimal and he can go to sleep ok at night. He has a new tick of twitching his nose and I wonder if it has to do with Prozac since I read about how that can cause facial tics. So I started to very, very, very slowly bring down the Prozac again.

He is very, very happy at camp and having a great time with his friends there. They are sword fighting every day with pool noodle swords, and playing D&D. It is a nerd dream camp.

My youngest is having melt downs every day out of the blue. Wish me luck with that one.


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