10-Year-Old with Panic (PANS)

(7:45am probiotics, 4pm 4ml Prozac, 1 Zithromax, 8pm Clonodine-a very tiny 1/4, and probiotics) This morning we left the house early so we could go to Starbucks and get some hot chocolate before school. Ewen's carpool buddy liked that too. Ewen was in good spirits, then when we got to school I walked in the classroom with him to help him carry his stuff. One of his classmates said, "Ewen, do you have your book report?" Ewen: "When is is due?" Classmate: "Today!" So I went to his teacher and apologized that he hadn't done his book report and that he would do it this weekend. I thought about how we have a wedding all day on Saturday and he has an out of town game on Saturday, then another out of town game on Sunday. But I told her we would get it done. She said he could turn it in next Friday. He will have to get up in front of the class and present it so it is a big deal book report. He has been so spacy, filled with procrastination and avoi...

I found a chart of the first two weeks of all this stuff. It's amazing how far we have come from here. When I read this I think...no wonder we were terrified. Here it is.

This morning Ewen woke up on his own and did some video editing on his computer. He is re-editing the video that Mike put together of the soccer tournament (all the big moments and goals) and putting his favorite techno music under it (rather than opera) and putting troll faces over his friend's (and himself) when scoring the goals. He was fine going to school and he read a Percy Jackson book about Greek Heroes out-loud to his carpool girl-friend and his older sister and me. It is a pretty good book. He read during the whole drive there and I was glad that it was a car full of nerds because his reading was appreciated. When we got there his friend bolted to the classroom like she always does, and he stretched on the back seat and grumped, mumbling and wondering why he always suddenly got so tired when he got to school. I reminded him that he always feels better as the day gets going. He had hardly any huffing this morning, but I think he tries extra hard not to when he is aroun...

Wednesday, April 27th, 4:35pm 4pm 4ml Prozac and 1 Zithromax,  8pm tiny bit of Clonodine and probiotics Ewen woke up tired and miserable this morning. He went to school without a smile on his face and when we got there he asked me if he could be homeschooled again. I told him that Grandma and Grandpa spent a lot of money on him going to this private school and that this is where he goes now. He said OK and moped into the classroom. He had also forgotten his notebook with his homework in it so I told his teacher and she sad that was OK today. It was the first time he has done that.  It was very hard leaving him like that and then getting up enough oomph and motivation/happiness to properly face my work at home day. But I reminded myself that he gets better during the day and actually got some editing done and actually cleaned the gross kitchen...which only took 15 minutes so I have to remind myself of that. I was right about him getting better during the day. When he came...

4.1ml prozac 4pm, tiny 1/4 of Clonidine 8pm 1 pill of Zithromax 4:30pm, probiotics 8pm, half a magnesium 8pm Today was better. Ewen got a good solid 10 hours of sleep last night because I made him get into bed at 9pm and he was asleep by 9:30. Also I gave him very little Clonidine in hopes he would be happier the next day. When he got up this morning he said he felt good and was feeling positive. He was happy when he got home from school and said he had fun in PE because they were playing some really awesome beanbag game, which is really good. He seemed to do less huffing today too. I went on the trampoline with him this evening and he was in a good mood and didn't seem depressed. He wasn't full of that Ewen spark and energy, but he had some of it and it was nice to see. I had him go to bed at 8:50 tonight and he couldn't believe I was doing that to him. But he complied and I sat on his bed for a while and talked. He wanted to know what PANS was and I tried to explain...

4.1 ML Prozac, small quarter of Clonidine (very small) 1st day of Zithromax (antibiotics) To catch you up, we got the blood work results back on Friday (4 days ago) and the strep titers were fine but it DID show that he was fighting something off hard core because  his mycoplasma pneumoniae were supposed to be .9 but are 3.09, which I'm told is very, very high. So we have an answer and the answer is yes, he has PANS . We talked about that in the beginning with his pediatrician since the symptoms fit the diagnosis, but I didn't realize that the flu and pneumonia he had in May could affect him in December. But if I would have thought about it more I would have remembered how I was concerned about him all summer long with his "abnormal behavior". So I think he has been dealing with the PANS for moths, then he had a flair up on December 15th. Today we started Zithromax for 3 week trail to see if that helps. He was very nauseous after the first dose since you give 2 pi...

4.2ml prozac at 4pm, small 1/4 Clonidine 8pm Last night I gave him a large 1/4, almost a half and today he was so miserable he came home from school - sick. He said he felt nausea in his throat. They took his temp in the office and it was a bit above 99 so maybe he is fighting something off. But every time he has extra Clonidine to help calm the tics more at bedtime, he is depressed the next day. Tonight he had a small one. I told Mike that we have been giving Ewen the 4.5 and 1/4 Clonidine for over 10 days now and we should try bringing the Prozac down to 4ml's and see if he does OK/better on that with his tics. I'm hoping we get the blood work back tomorrow to see if his body is fighting off anything and if it looks like he does have PANDAS or PANS. If so, then we will treat it. I want to get him off this Prozac since his tics are so bad. I don't know if the tics are from the PANS or from the Prozac, but I think it is the Prozac since they increased with the incre...