I Found a Chart of the First Few Awful Days, Starting December 11th, 2015

I found a chart of the first two weeks of all this stuff. It's amazing how far we have come from here. When I read this I think...no wonder we were terrified. Here it is.

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Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences. We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ........... to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal of an

Depressed Again

4ml prozac, 1/6 Clonidine, probiotics (no more antibiotics until Sunday) 1/2 magnesium Ewen was miserable all day and wouldn't go swimming at his Grandma's house when she picked him up. Tonight going to sleep he had no tics but he said that he was anxious and depressed and wanted to break free from all of this. He was on the verge of crying which is very unusual for him. It broke my heart. We are both tired of the highs and lows but he is the one living it. And he is so young it's not fair. Mike and I talked about it and maybe we should put the Prozac up again since the tics have gone. We feel so lost with all of this. It was like he was cured for 2 weeks and now he is sick again, even though he is still taking the Zithromax. He has his class trip and soccer tournament coming up in 2 days. I hate that he will be away from home for 4 days when he isn't in good shape.

10-Year-Old with Panic (PANS)

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