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Update - Thursday Night, April 21st

4.2ml prozac at 4pm, small 1/4 Clonidine 8pm

Last night I gave him a large 1/4, almost a half and today he was so miserable he came home from school - sick. He said he felt nausea in his throat. They took his temp in the office and it was a bit above 99 so maybe he is fighting something off. But every time he has extra Clonidine to help calm the tics more at bedtime, he is depressed the next day. Tonight he had a small one.

I told Mike that we have been giving Ewen the 4.5 and 1/4 Clonidine for over 10 days now and we should try bringing the Prozac down to 4ml's and see if he does OK/better on that with his tics.

I'm hoping we get the blood work back tomorrow to see if his body is fighting off anything and if it looks like he does have PANDAS or PANS. If so, then we will treat it.

I want to get him off this Prozac since his tics are so bad. I don't know if the tics are from the PANS or from the Prozac, but I think it is the Prozac since they increased with the increase of dosage.

I have been researching TMS and it seems like a very good option although his Psychiatrist said that it isn't an option. Also I saw that today it has been proven that auto-immune affects the brain...duh.
https://cosmosmagazine.com/life-sciences/lymphatic-drain-inside-your-brain

Owen's pediatrician has known for a while that his vega nerve is affected by inflammation caused by the MMR and his auto-immune response to it. I wish I had never done the MMR with him. We did it when he was 9 and his stuttering got so bad afterwards that he could barely speak for a good two weeks. luckily it calmed down and went away but maybe it is the live measles virus that made his flu so bad last may 2015 and affected him neurologically with that, is what triggered the panic attacks on December 15th of 2015,  and is still attacking his brain now.

I know that is a lot of scary maybe's in that paragraph above, but he and my oldest both had reactions to vaccines. Luckily my youngest is OK and has not had any reactions to her vaccines. My oldest has autism and she also has a mitochondrial disorder.

So when we get back Ewen's blood work we will see if his strep titers are high or not and if his body seems to be trying to fight off some type of an infection or not. Just from him randomly having low grade fevers, makes me think that this lingering brain virus flairs up every now and then. He randomly had a low grade fever out of the blue when we were at his psychiatrists office the last time we went. I should keep a thermometer and take his temp every day and see what the heck is going on with that.

Ewen has a soccer tournament at the beach this weekend and were are supposed to leave tomorrow and spend two nights at a nice hotel on the beach. But he's not excited to play the games and he just isn't feeling well. It breaks my heart so much. I went away this past weekend to a funeral that was very sad. I flew there that morning for the funeral and back again the next day. All the flying and the stress of the service...I handled them all just fine. But when I got home to Ewen's drama and sadness I just lost it and I had a panic attack. I was able to control it without extra medication but it was hard not to vomit and I was able to just finally go to sleep.  I just want my son to be OK.


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