Tuesday Dec 22nd
Benadryl 10 ML's 9:30 am
Benadryl 10 ML's 1:00
1/2 propanol 3:12
1/2 propanol 4:17
1/2 propanol 6:14
1/2 propanol 8:55pm
1/2 propanol 10pm
Sleep at 10:50, worried, eyes hurting, swallowing still bothering him. Loose stool at one point. Took Jeff and I to get him to sleep with music and calm story but no panic attack. Nightmares. Swallowing excessive saliva all through sleep all night long until the morning.
Wednesday Dec 23rd
1/2 propanol 8:40 am
1/4 Lexapro 8:40 am
At 11am, not panicky and didn't need more propanol he said. But he can't swallow food through tight throat. Had some smoothie for breakfast. Wants to keep head in iPod video games and constantly chew gum to control excessive saliva.
1/2 propanol 1:10pm still can't swallow food. Had a bit of a smoothie for lunch. But happy and not chewing gum for saliva.
1/2 propanol, 4:50 pm he said he was thinking bad thoughts so he knew he needed it again.
1/2 propanol 6:30 pm...difficulty swallowing but ate some soup and a soft roll for dinner. Played video games with friend all day.
1/2 propanol 9:49 and a melatonin. Asked for the propanol so gave it. Amped and worried about going to bed and nightmares.
Didn't go to sleep till midnight, wired and tired, said he felt like he was full of caffeine and having trouble with throat and breathing ( due to anxiety ) from feeling so wired. Thrashed about and moaned for hours. Called the on call Dr and he said stick it out and don't give more propanol. There was nothing to give to help.
Slept well all night. No bad dreams. First day with no saliva.
Thursday Dec 24th
1/2 propanol 7:20 am (asked for it, feeling panicky)
1/4 Lexapro 7:20 am
At 1:30 he didn't ask for more Propanol yet and ate soup and bread but was having trouble swallowing. He was doing well after playing soccer with Jeff.
1/2 propanol 6:00 pm, asked for it, can't swallow again. A few sips of soup and a bite of roll for dinner.
Dec 25th
1/4 Lexapro and no Propranolol
10:40am 1/2 Propranolol
woke up depressed
Couldn't eat Christmas dinner. Had to go home at 2pm exhausted
8:51 is going to try to go to bed without propranolol. We are going to use the nebulizer with steam to slow and calm breathing and open up his throat. He is happy about soccer tomorrow.
Wouldn't use it. Said he hates the noise it makes and he needed to go to bed feeling accomplished not the opposite.
10pm depressed now. Angry and not being able to enjoy Christmas. Beaten down by the anxiety and sadness and exhaustion of it. Jeff is sitting with him, hopefully he will fall asleep. Finally after being very angry and depressed he fell asleep at 10:30 pm while I patted his back.
12/26 woke up very depressed and upset with how awful he felt. Gave him 1/2 propanol and 1/4 Lexapro.
2:45 1/2 propanol, buzzing. Ok with friends but very buzzing. Won't be ok when friend leaves in my opinion . Thinking that we should stop he Lexapro since morning depression started with Lexapro.
He says he controlled bad thoughts with propanol and wants to keep trying the Lexapro. Today only ate a few smoothies, soup and a muffin.
List of symptoms and level
- anxiety - 7
- tight throat - 7
- buzzing - 8
- depression in morning - 9
- depression and fear at night - 9
- panic at night - 5
- needs to keep his mind occupied with video games only or a friend over - 9.5
- won’t eat properly - 8
- working hard to function - 9
- spitting and saliva in his mouth - 0
9:30pm 1/2 a propranolol
Doesn't want to stop the computer at 9:30 because he wants to keep his mind busy.
He had a little bit of broccoli casserole and pumpkin pie for dinner while playing video games with Jeff.
10 pm came to bed, 11:15 still up talking, afraid of falling asleep, bad dreams and bad morning. Ok talking to me though.
11:26 finally asleep after rubbing his feet for 45 minutes and chatting.
12/27/15
9:20 am Woke up asking for a propranolol we gave him 1/2
didn’t want to take his Lexapro and Jeff and I decided that we were done with this path and to try holistic now instead, but keep using the propranolol. Called and emailed to make appt with chiropractor and accupuncturist
12;30 lunch - some smoothie, spaghettios, muffin
2pm, doesn’t want to go play soccer with his friends, will only say home and play video games. Seems a bit depressed but functioning…doesn’t seem too anxious though. Some trampoline breaks.
4pm lethargic, doesn’t want to go out at all, even for trampoline. He and his friend are quite tired together. He seems out of sorts, nothing left in him & doesn’t want a propranolol. Has not been spitting or getting liquid in his mouth.
- anxiety - 6.5
- tight throat - 7
- buzzing - 4
- depression in morning - 8
- depression and fear at night getting ready and going to bed - 3
- panic at night falling asleep - 5
- needs to keep his mind occupied with video games only or a friend over - 9
- won’t eat properly - 6
- working hard to function - 9
- spitting and saliva in his mouth - 0
8:15, he ate dinner, was hungry but stayed playing his video games with his friend on FaceTime. He eats better when distracted and even with his tight throat he ate chicken and broccoli and corn bread. He had a bath without moaning about it and seems in better spirits tonight on his computer with his friend.
8:44 1/2 propranolol
Nice jump on the trampoline with Jeff
11:30 sleep, worried about tight throat making it hard to breathe, needed lots of reassurances hat it has been checked and it is safe and clear.
12/28 8:30 am woke up and took a 1/2 propranolol. Happier this morning but asked Jeff to help him get out of bed…said it was like a black hole. But he is in good spirits and talking to his friend on FaceTime starting Ag.ario again. Had a smoothie for breakfast.
4:15 propranolol ( nervous at therapy)
5:20 another half propranolol
Panic attack but it went away with the propranolol.
11pm took an hour of back patting to put him to sleep. No extra propranolol
- anxiety - 8 (ok in morning panic attack at dr office)
- tight throat - 8
- buzzing - 5
- depression in morning - 4
- depression and fear at night getting ready and going to bed - 7
- panic at night falling asleep - 6
- needs to keep his mind occupied with video games only or a friend over - 8
- won’t eat properly - 6
- working hard to function - 9
- spitting and saliva in his mouth - 4
12/29/15
woke up 8:45 in a good mood after good night sleep, didn’t want propranolol, watched PBS with his sisters and played Pokemon on his bed with Amelia. Did a few big sighs and coping well.
10:15am 1/2 propranolol (he asked for it) and 1 scoop of inositol (Dr. Worthington said OK with Propranolol)
11:04 won't go I awake for fear of leaving the house.
12pm we went for a small bike ride around the neighborhood
Won’t do the CBT book with Jeff
2pm 1 scoop of inositol
2:15, spirits up a bit and wants to ride bikes to the Vine.
After getting mad at me because i tried to talk to him about his fears and making it “worse”, he shaken up and is now in his room and doesn’t want any part of a bike ride. 3:10 1/2 propranolol
4:30 1/2 propranolol
10pm propranolol (Asked for it)
- anxiety - 8.5
- tight throat - 8
- buzzing - 6
- depression in morning -0
- depression and fear at night getting ready and going to bed -
- panic at night falling asleep -
- needs to keep his mind occupied with video games only or a friend over - 8
- won’t eat properly - 6
- working hard to function - 8
- spitting and saliva in his mouth - 7 (needs gum)
12/30
8:30 1/2 propranolol
10:36 Whole propranolol (needs gum)
11:04 I asked him if he still feels anxious after 10mg and he said yes but it feels better than before. Waiting for Dr. to call back so I can talk to him about possibly doing Buspar.
6:43 whole propranolol
8:30 very twitchy and hard to concentrate
Freaked out about taking a bath.
9pmm
10:15 sleep with me rubbing feet for 10-15 minutes. He said he had lots of saliva and that was bothering him.
- anxiety - 8
- tight throat - 7
- buzzing - 7
- depression in morning -1
- depression and fear at night getting ready and going to bed - 3
- panic at night falling asleep - 0
- needs to keep his mind occupied with video games only or a friend over - 8
- won’t eat properly - 6 (can't come to table)
- working hard to function - 8
- spitting and saliva in his mouth - 7 (needs gum)
- Fear of water (won’t take bath) - 9
12/31
9am whole propranolol
10am 1 1/2 inositol
took agario away for the morning, said 2 hrs in afternoon only…
12 Noon very happy, relaxed, laughing with his siblings. Able to go to Starbucks. First time like this since it all started.
2pm, said he could do agario a bit on his phone
3:30 whole propranolol (has been calm and happy all afternoon but said at 3pm he got a bit anxious on his bike ride). He seems to get a bit grumpy and surly an hour after the propranolol.
4:30 1 1/2 inositol. Doing fairly well, went for a short trampoline break from Minecraft story mode with his sisters and was OK with it.
4:45 feeling not anxious but a bit “ugh” and down/tired from the propranolol. Maybe tomorrow half one? I asked him about it and he said he would rather be sluggish than anxious and wants the whole one.
5pm, reading a book but starting his huffing breath/frequent sighs that shows he is coping and feeling discomfort. Face looks strained.
5:30 bike ride, perking up a bit. Went to room to veg.
7:40 home from NY party. He is feeling bleg, went on trampoline and managed to get in the shower just now. He asked for another propranolol. Maybe I will give him half. Not sure.
We had a nice NYE part on the couch watching VE after he calmed down in front of his computer. He did not have more propranolol but asked for it at midnight. Got him to sleep quickly without it but he was very uncomfortable.
- anxiety - 7
- tight throat - 7
- buzzing - 6
- depression in morning -0
- depression and fear at night getting ready and going to bed - 8
- panic at night falling asleep - 5
- needs to keep his mind occupied with video games only or a friend over - 6
- won’t eat properly - 6 (can't come to table)
- working hard to function - 8
- spitting and saliva in his mouth - 5 (needs gum)
- Fear of water (won’t take bath) - 5 (had a quick shower after party)
1/1/16
gave 1 propranolol when woke up
went for a bike ride but came back early because he said he was feeling anxious.
at 12:30 rode bike to Thomas center and rode around with a friend for a while.
3:30 gave 3/4 propranolol but he was very anxious by that point and wouldn’t jump on the trampoline because it was wet
I gave him some food and asked him to take his trampoline break after he eats and calms down a bit fro the next dose of propranolol. I only gave him 3/4 so I feel better about giving him more at possibly 7 or 8pm? I think tomorrow we will do the next dose at 2pm
I’m thinking 8-2 10 mg, 2-8pm 8mg 8pm 5mg???
4:15 1 scoop inositol
Offered to come with me to feed Sandy tonight then he had his massage with Suzanne at 7pm. He said he liked the deep pressure stuff but not the skin rubbing or the lotion.
He was calmer tonight.
8:45 1 Nerve Tonic (Suzanne gave them to us - homeopathic)
He told me today that his anxiety is all up and down all day.
9pm-10pm relaxed on couch watching Master Chef Jr. and played Moncada with Jeff. His face was tired but much less stressed.
Went to sleep way more easily than in a while with me rubbing his feet.
- anxiety - 7
- tight throat - 6
- buzzing - 6
- depression in morning -0
- anxiety in the morning - 6
- depression and fear at night getting ready and going to bed - 0
- panic at night falling asleep - 1
- needs to keep his mind occupied with video games only or a friend over - 7
- won’t eat properly - 5
- working hard to function - 7
- spitting and saliva in his mouth - 5 (when lying down)
- fear of water (won’t take bath) - 3.5 (didn’t like rain today but rode home in light drizzle) took a shower on his own accord to get rid of lotion
- paranoid & jumpy - 5 (worried about the dooming look of the wet, dark pathway to car at grandma’s house)
1/2/15
8:45 1 1/4 propranolol seemed fine and calm watched curious George with Amelia
After medicine got grumpy, he calls it, "ugh" played soccer with much resistance bit did it for a short while then back to Agario in his room. Bad morning.
11:30 gave 1 scoop inositol
8pm half a propranolol
Very very Miserable all morning and afternoon, drove to Vine for cinnamon roll and still ugh there. Came out of funk about 4:30 when mom came to babysit. He wouldn't go to her house, said it is hard to be away from the house.
Was happier after 4:30 according to mom. We got back st 7:30 and he didn't want propranolol until 8pm, gave 1/2. Went to sleep fine.
- anxiety - 7
- tight throat - 6
- buzzing - 6
- depression in morning -0
- anxiety in the morning - 6
- depression and fear at night getting ready and going to bed - 0
- panic at night falling asleep - 1
- needs to keep his mind occupied with video games only or a friend over - 8.5
- won’t eat properly - 5
- working hard to function - 8
- spitting and saliva in his mouth - (when lying down)
- fear of water (won’t take bath) -8
- paranoid & jumpy - 7
I think he did better when the meds wore off? Tv and video games all day long.
10:20 sleep, asked me to stop rubbing his feet. Drifted off on own but a bit troubled.
1/3/16 Sunday
9am said he woke up with anxiety at 8am. Gave him half a propranolol at 9am with 2 scoops of inositol and he has had a good morning with that. It is 12:03 now and I might offer him another propranolol at 1pm if he needs it.
12:45 half propranolol
Played soccer in Jonesville from 2:30-4:30
Jeff said said ok 1st hr got blah 2nd hr
Did not want propranolol when he got home at 5pm.
6:11pm 1.5 scoop inositol
8pm 1 nerve tonic
Doesn't want to take a bath keeps stalling
- anxiety - 5
- tight throat - 5
- buzzing - 4
- depression in morning -1
- anxiety in the morning - 7
- depression and fear at night getting ready and going to bed -0
- panic at night falling asleep - 0
- needs to keep his mind occupied with video games only or a friend over - 8
- won’t eat properly - 2
- working hard to function - 6
- spitting and saliva in his mouth - (when lying down)
- fear of water (won’t take bath) - 9 didn’t take one
- paranoid & jumpy - 5
1/4/16
2 scoops of inositol 8am
Did well 1st day of homeschool. Doesn’t want to run very much, a bit bleg
1 scoop of inositol 12pm
wanted to leave the library right after we got there.
able to relax at home which is good
no propranolol all day so far
2 scoop inositol 7:30pm
antibiotics 7:50pm (Dr. Worthington said it might be PANDAS)
Much better today but still doesn’t want to get in the bath.
8:22 gave a little less than half a propranolol. He said he was anxious. He thought he might take a bath if he had a propranolol.
- anxiety - 5
- tight throat - 6
- buzzing - 2
- depression in morning -1
- anxiety in the morning - 4
- depression and fear at night getting ready and going to bed -0
- panic at night falling asleep - 0
- needs to keep his mind occupied with video games only or a friend over -4
- won’t eat properly - 2
- working hard to function - 6
- spitting and saliva in his mouth - (when lying down)
- fear of water (won’t take bath) - 10 didn’t take one
- paranoid & jumpy - 4
1/5/16
came in to my room at 6am with a panic attack after a nightmare that he was bitten by a black widow then gunned down by a bike group on the way to the hospital. We worked through it then I gave him 2 scoops of inositol. He eventually went to his computer to decompress then at 7:30 said he was having serious anxiety. gave him 3/4 propranolol.
9:30 feeling more relaxed finally, gave antibiotics and he has some toast and jam and smoothie for breakfast.
-Left message again for Amy’s acupuncturist
-called electrotherapy place and they don’t do it on a scalp
12:30 half propranolol
came home from my mom’s thinking his throat was closing up and freaking out. I told him that it was extra scratchy from having the strep test yesterday. He felt better.
3:30 half propranolol
bad shape, anxious about going outside, thought a storm was coming (it wasn’t) and that he was going to get hit by lightening and die. He came out and wouldn’t wear his jacket even though it was less than 40 degrees.
Better tonight, fun on the trampoline with everyone and ate dinner with the family.
6:30pm antibiotics
7pm 1/2 propranolol
7:15 had a bath and washed his hair but very upset and angry about it.
Went to bed with a bit of fear. Avery slept in the top bunk. Went to sleep after 5 minutes of thumping his back.
- anxiety - 9.5
- tight throat - 9
- buzzing - 8
- depression in morning -1
- anxiety in the morning - 9.8
- depression and fear at night getting ready and going to bed -7
- panic at night falling asleep - 7
- needs to keep his mind occupied with video games only or a friend over -8
- won’t eat properly - 6
- working hard to function - 8
- spitting and saliva in his mouth - (when lying down) 8
- fear of water (won’t take bath) - 8 took bath upset about it
- paranoid & jumpy - 8
1/6/16
7:30 am 1/2 propranolol
9:30 1.5 scoop inositol
doing well at homeschool but worried that since he feels a bit stiff that is anxiety tells him he might have muscular dystrophy.
1/2 propranolol at 3:45pm
1/2 propranolol 7:30
Antibiotics 8pm
Melatonin
Sleep 9:30 bad panic while falling asleep...awful.
- anxiety - 7
- tight throat - 8
- buzzing - 7
- depression in morning - 1
- anxiety in the morning - 6
- depression and fear at night getting ready and going to bed - 8
- panic at night falling asleep - 9.5
- needs to keep his mind occupied with video games only or a friend over -7
- won’t eat properly - 6
- working hard to function - 7
- spitting and saliva in his mouth - (when lying down)
- fear of water (won’t take bath) - 9
- paranoid & jumpy - 8
1/7/16
2 scoops inositol 7am
9am 1/2 Propranolol
11:30 antibiotics
11:30 2 scoops inositol
12:30 1/2 propranolol
having trouble swallowing food and getting panic symptoms from it. Very worried today if he panics about eating now. Talked to Patel about Intuiv and the reviews online…he said he has seen it help many kids with anxiety as bad as Owen’s, said lots of kids have anxiety that bad.
Biked to Vine, and raced back again. Not comfortable if not in front of computer.
Asked Dr Worthington about Intuiv and she wants him to just do inositol and amox, thinks he has PANDAS
4:20 1/2 propranolol
Doing better and ate dinner (BLT's)
Lots of trampoline
Let him stay at computer, seems to help
7:40 3/4 propranolol
7:51 2 scoups inositol
No melatonin
Used air purifier and sleepy time Pandora
I sat on his bed and played video games on my phone. Hummed himself to sleep. Not restful but no apparent panic!!!
anxiety - 8.5
tight throat - 8.5
buzzing - 7.5
depression in morning - 0
anxiety in the morning - 4
depression and fear at night getting ready and going to bed - 5
panic at night falling asleep - 2
needs to keep his mind occupied with video games only or a friend over - 8.5
won’t eat properly - 7.5
working hard to function - 8
spitting and saliva in his mouth - (when riding bike after Vine) 8
fear of water (won’t take bath) - didn't ask
paranoid & jumpy - 8
1/8/16 Hammock Beach evening
7:30 2 scoops inositol
9:40 1/2 propranolol
11:20 not feeling so well. Having a yogurt.
1:20 lunch, tuna melt and probiotics
1:30 1/2 propranolol
3:30 1.5 scoops inositol
4:30 asked for 1/2 propranolol so I gave it to him
8pm 3/4 propranolol doing well at hammock beach
Bed at 10:30 feeling anxious but throat ok for the 1st time in weeks
1/9/16 Hammock Beach
9:30 1/2 propranolol
9:30 antibiotics
1pm 1/2 propranolol
1 scoop inositol
4:30 1/3 propranolol
7:30 pm 1/3 propranolol ( feeling anxious)
Not much dinner, tight throat back 😕
1 scoop inositol
8pm Advil for headache
9pm antibiotics
10:30 bed not happy with huffing etc, didn't take too long to fall asleep with me patting his back
1/10/16 hammock beach
9am 1/2 propranolol
10am 1scoop inositol
12:30 1/2 propranolol
Home
His face looks exhausted, not asking for propranolol. Will skip 4pm dose and offer at 7:30 if it works out. Need to wean down if going to try new med next week.
7pm asked for propranolol. Gave him 3/4
8pm, feeling a bit better but needing gum
8pm antibiotics
10pm bedtime at home, panicked until 11pm. Awful night.
1/11/16
8:45 1/2 propranolol
1st therapy session with Dr. L
12 noon 2 scoops inositol (maybe will help instead of propranolol?)
lunch and antibiotics
1pm 1/2 propranolol, (he said inositol didn’t help). Maybe we will try 3 scoops next time.
1:39 still feeling a bit anxious.
picked up Leif from school…didn’t want to look around after care field.
5pm 1/2 propranolol and 1 scoop inositol
9pm a tiny bit of propranolol
Horrible bed time, took 10pm - 11pm to go to sleep with much distress
1/12/16
9:301/2 propanolol &Antibiotics & 1scoop inositol
12:45 1/2 propranolol and Probiotics
7:40 3/4 propranolol
huffing a lot
feeling hope about starting prozac tomorrow or Thursday
asleep in half hour by 10:30. Lots of anxiety but not much distress
1/13/16
9:30 am propranolol
10:30 a scoop and a half of inositol
10:50 antibiotics
1pm doing a bit better, has been on computer all morning to now.
managed some lunch at noon but spit half the sandwich in the trash. Not sure how much went in his belly. Eating terrible and tight throat terrible.
1pm 1/2 Propranolol and 1 scoop inositol
4:20 1/2 propranolol and 1.5 scoop inositol
soccer practice tonight
Did well at soccer!
8pm was anxious, gave 3/4 propranolol and 1.5 inositol, also some probiotics
Sleep at 11:20 a horrible night. Angry I stopped him from playing Agario at 10 pm and made him go to bed. Horrible and angry, nasty, accusing and anxious for 1hr and 20 minutes. Saying he can't control breathing and breathing too quickly.
anxiety - 7
tight throat - 9.5
buzzing - 6
depression in morning - 1
anxiety in the morning - 6
depression and fear at night getting ready and going to bed - 9
panic at night falling asleep - 8
needs to keep his mind occupied with video games only or a friend over -8.5
won’t eat properly - 9
working hard to function - 7
spitting and saliva in his mouth all day -8
fear of water (won’t take bath) - 9
paranoid & jumpy - 5
1/14/16
8:30 2 scoops inositol and 1/2 propranolol
9pm breakfast, .1 ML Prozac
12pm 2 scoops inositol 1/2 propranolol
very, very tired and down
no appetite today
4pm 2 scoops inositol
4:30 says does not need propranolol
no appetite today
Ate some salmon and rice in front of his computer when I told him he would have to go to the hospital if he doesn't eat. He said his throat isn't tight but he is worried he is going to breathe in his food and either choke or drown.
7:40pm 1/2 propranolol and 2 scoops inositol
sleep at 10:30
Angry to be put to bed but didn’t take long to go to sleep after he tried.
anxiety - 6.5
tight throat - 3
buzzing - 5
depression in morning - 3
anxiety in the morning - 3
depression and fear at night getting ready and going to bed - 6
panic at night falling asleep - 5
needs to keep his mind occupied with video games only or a friend over - 6
won’t eat properly - 9
working hard to function - 6
spitting and saliva in his mouth all day -6
fear of water (won’t take bath) - 10 (no bath in almost a week)
paranoid & jumpy - 4
mood (0 sad 10 happy) - 6
1/15/16
9am woke up
9:15 propranolol
9:30 2 scoops inositol and .2 ML Prozac
1 piece of toast (he ate it)
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