(Morning probiotics, 4pm 4ml's of prozac, 4pm 250mg Zithromax)
This morning Ewen was happy getting up. He was excited about his friends coming over for a swim hang-out at my parent's house that afternoon. It was the first weekend we have had in a long time that wasn't taken up with working weddings or soccer games/tournaments etc. It was amazing to not have any plans. So Mike painted the deck in the back which was getting gross and it looks much better. We all helped him this morning, including Ewen. He actually painted for a while too. He brought his iPod out and played some techno music while we worked. I love his music but Mike would much prefer some Gram Parsons or anything more mellow.
We went to Grandma's and Grandpa's at lunch time and 3 of his friends came over. They ate lunch then played Magic The Gathering for about 2 hours before getting in the pool and they were a rowdy bunch. They are more rowdy that Ewen but he still had fun with them. His older sister sat glumly at the side of the pool since she has her period. So Mike took her to get ice cream at he local hippie place where all the ice cream is coconut based and nothing is dairy or soy and everything is gluten free. It is a spectrum child's dream. Even the sprinkles are gluten free and the whipped cream is rice-based.
Anyway, while Ewen was playing with his old friends that he hasn't really wanted to hang out with since he first got sick, his BFF, Luke's mom texted and asked if Ewen could come over that afternoon. I asked Ewen if he needed to go home and rest or if he would rather go over to Luke's house and he chose Luke's, which I was very happy about since yesterday he said just wanted to stay home and not go out to dinner. So his friends left my parent's house and Ewen said he wanted to teach Grandpa how to play Magic The Gathering. I told him that if he did that, he wouldn't have a break before Luke and his mom picked him up from our house at 4:45. So his choice was he could either show Grandpa the card game and then go straight to Luke's house without a break, or he could not show Grandpa and have some time to go home and chill out on his computer before he went to Luke's house. He chose to stay and show Grandpa how to play Magic then go straight to Luke's house without a break. That means he chose talking to a human being...his family, his grandfather, over looking at his computer.
I don't even know how to explain how new and unusual and how very much that is like how Ewen used to be before all of this PANS stuff. Today he stuttered a little just like he used to. He was very, very much like our old Ewen. I always have to make myself not get too excited when he is like this because we go up and down and the disappointment when we step back a bit, always brings me down further than it should. So I try to be guarded. But if I was not being guarded right now I would be jumping up and down with excitement shouting, "Thank goodness, I can't believe it, my baby is back!!"
But instead I am going to be like. This is cool. I hope it stays for a while.
So now he is spending the night at Luke's house. He hasn't spent the night away from home without Mike or me since he got sick in December. This is the first away sleepover. So it is a big deal. I hope he gets to sleep OK tonight. He should be able to. He spent the night there plenty of times last summer so he is comfortable there.
He is so happy when he is being sociable. I hope this Magic game gets him away from the computer, back into having a rich and exciting social life, and that he will be able to concentrate in school again and sit for a while and study. That is the last big challenge...focussing on things that aren't super interesting to him.
So I will go to sleep happy tonight but a bit nervous that he is away. This is good.
This morning Ewen was happy getting up. He was excited about his friends coming over for a swim hang-out at my parent's house that afternoon. It was the first weekend we have had in a long time that wasn't taken up with working weddings or soccer games/tournaments etc. It was amazing to not have any plans. So Mike painted the deck in the back which was getting gross and it looks much better. We all helped him this morning, including Ewen. He actually painted for a while too. He brought his iPod out and played some techno music while we worked. I love his music but Mike would much prefer some Gram Parsons or anything more mellow.
We went to Grandma's and Grandpa's at lunch time and 3 of his friends came over. They ate lunch then played Magic The Gathering for about 2 hours before getting in the pool and they were a rowdy bunch. They are more rowdy that Ewen but he still had fun with them. His older sister sat glumly at the side of the pool since she has her period. So Mike took her to get ice cream at he local hippie place where all the ice cream is coconut based and nothing is dairy or soy and everything is gluten free. It is a spectrum child's dream. Even the sprinkles are gluten free and the whipped cream is rice-based.
Anyway, while Ewen was playing with his old friends that he hasn't really wanted to hang out with since he first got sick, his BFF, Luke's mom texted and asked if Ewen could come over that afternoon. I asked Ewen if he needed to go home and rest or if he would rather go over to Luke's house and he chose Luke's, which I was very happy about since yesterday he said just wanted to stay home and not go out to dinner. So his friends left my parent's house and Ewen said he wanted to teach Grandpa how to play Magic The Gathering. I told him that if he did that, he wouldn't have a break before Luke and his mom picked him up from our house at 4:45. So his choice was he could either show Grandpa the card game and then go straight to Luke's house without a break, or he could not show Grandpa and have some time to go home and chill out on his computer before he went to Luke's house. He chose to stay and show Grandpa how to play Magic then go straight to Luke's house without a break. That means he chose talking to a human being...his family, his grandfather, over looking at his computer.
I don't even know how to explain how new and unusual and how very much that is like how Ewen used to be before all of this PANS stuff. Today he stuttered a little just like he used to. He was very, very much like our old Ewen. I always have to make myself not get too excited when he is like this because we go up and down and the disappointment when we step back a bit, always brings me down further than it should. So I try to be guarded. But if I was not being guarded right now I would be jumping up and down with excitement shouting, "Thank goodness, I can't believe it, my baby is back!!"
But instead I am going to be like. This is cool. I hope it stays for a while.
So now he is spending the night at Luke's house. He hasn't spent the night away from home without Mike or me since he got sick in December. This is the first away sleepover. So it is a big deal. I hope he gets to sleep OK tonight. He should be able to. He spent the night there plenty of times last summer so he is comfortable there.
He is so happy when he is being sociable. I hope this Magic game gets him away from the computer, back into having a rich and exciting social life, and that he will be able to concentrate in school again and sit for a while and study. That is the last big challenge...focussing on things that aren't super interesting to him.
So I will go to sleep happy tonight but a bit nervous that he is away. This is good.
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