Skip to main content

Up and Down

4ml prozac at 4pm, 1 zithromax, 9pm 1/6 clonodine

Well it has been up and down. We met with Ewen's pediatrician yesterday and told her about how he was joyful now and up for anything. But he also said a couple of nights ago that he felt a bit anxious and had an OCD thought that the itchy part on his leg might be poison. That made me a bit dismayed because the Zithromax is supposed to be curing this stuff.  Today he has been complaining about a twitchiness in his leg. I would start coming down on the Prozac to try and help the weird leg twitchy feelings if he hadn't complained of anxiety 2 nights ago.

But overall since he has been taking the Zithromax, he has been happy and healthy and having fun. He has been more social and when he went swimming 2 days ago he talked to his sister the whole time and was very sociable and happy.  It's just these past couple of days he has been more dissatisfied and needing to be entertained every second and craving sugar like a mad man... like before. I thought we were on the road to steady recovery but I suppose it is typical of recovery from neurological issues to take two steps forward and one step back.

His huffing is much much better but I'm concerned about this leg discomfort. He said he feels like it needs to be massaged 24/7
I just gave him his Clonodine and we will see if that helps his leg.

I was shocked at his doctor appointment when she said that he may have to take antibiotics until he has an adult immune system and the newest literature was until he was 22. That is 11 more years, double his age now. I don't like to think of him as having a long term illness. But at least it isn't a degenerative one if it is treated.

So today was a bit sad. I am taking Prozac too and I was glad of it today. I didn't sink into a funk like I have previously when he has had set backs.


Comments

Post a Comment

Popular posts from this blog

Still Chugging Along

It has been almost a month now since the terrible effects of the prednisone.   This morning I gave 50 mg hydroxyzine and 500mg of phenibut and she still said she wasn't feeling great at 11:30am. So I gave her 3 droppers of Valerian Calm, which seems to offer a small boost of happiness sometimes.   I stopped her 5HTP and replaced it with 10mg of fluoxatine. But yesterday she said she was having a hard time peeing. So if that happens again we will have to re-evaluate.   After she is comfortable on an SSRI I want to start the minocycline antibiotic, but I don't want to do that until I get her SSRI support up incase the antibiotic makes her feel worse I read minocylcine can have negative psychiatric effects for some people). I have maxed out her supports with the phenibut and the hydroxyzine and have nothing left to give if the minocycline does something weird neurological too.  So to support myself, I took 20mg of fluoxatine (prozac) last night and feel w...
Post a Comment
Read more

Today's Basics and a Few Blessings

(Fish oil, probiotics, 4ml prozac, melatonin) Ewen did better today than the past two. He was just a little twitchy going to sleep and was able to hang out at Starbucks this afternoon without begging for a screen to look at. I told him I thought he had lost the ability to entertain himself so he said he was going to try. I told him last night that to go to sleep you have to be calm and let yourself think and then fall asleep. I said to make sure to keep Trash (what he calls his anxiety and OCD) out of it and he agreed. He still needs me to sit in there every night while he falls asleep. So I sit in his bean bag and play Clash Royal on my phone. Today he did well overall I think. I also wonder if it is because we are on the 3rd day after taking 500mg of Zithromax? He was huffing a bit today though, but not all day long and mostly when he was playing video games on his computer. I am still taking Prozac too and it makes me very sleepy. I could sleep all day. It is very hard to get ou...
Post a Comment
Read more

Out of the Hole

( 4ml Prozac, fish oil, 1/2 magnesium, probiotics, 1mg melatonin) Today Ewen went to a birthday party a couple of hours from home and had a lot of fun. He hung out with his dad a lot today which is what he used to do before he got sick. When he got sick he completely switched from Mike to needing me 24/7. He was not interested in hanging out with Mike. Daddy was all about watching soccer, playing soccer, enjoying everything that Ewen was good at and going out and having fun. Mommy was there to make sure he was feeling OK. So he switched from Mike to me. I realized this morning as Mike got up early to get Ewen's soccer stuff together and go to the store to get a present for the party, that he was taking over his old role as Ewen's care taker. I like that because Ewen has to be so active all the time that I don't have time to spend with the girls. So if Mike focusses on Ewen with his crazy social life and activities, I can focus on the girls and everything else. It was re...
Post a Comment
Read more