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Up and Down

4ml prozac at 4pm, 1 zithromax, 9pm 1/6 clonodine

Well it has been up and down. We met with Ewen's pediatrician yesterday and told her about how he was joyful now and up for anything. But he also said a couple of nights ago that he felt a bit anxious and had an OCD thought that the itchy part on his leg might be poison. That made me a bit dismayed because the Zithromax is supposed to be curing this stuff.  Today he has been complaining about a twitchiness in his leg. I would start coming down on the Prozac to try and help the weird leg twitchy feelings if he hadn't complained of anxiety 2 nights ago.

But overall since he has been taking the Zithromax, he has been happy and healthy and having fun. He has been more social and when he went swimming 2 days ago he talked to his sister the whole time and was very sociable and happy.  It's just these past couple of days he has been more dissatisfied and needing to be entertained every second and craving sugar like a mad man... like before. I thought we were on the road to steady recovery but I suppose it is typical of recovery from neurological issues to take two steps forward and one step back.

His huffing is much much better but I'm concerned about this leg discomfort. He said he feels like it needs to be massaged 24/7
I just gave him his Clonodine and we will see if that helps his leg.

I was shocked at his doctor appointment when she said that he may have to take antibiotics until he has an adult immune system and the newest literature was until he was 22. That is 11 more years, double his age now. I don't like to think of him as having a long term illness. But at least it isn't a degenerative one if it is treated.

So today was a bit sad. I am taking Prozac too and I was glad of it today. I didn't sink into a funk like I have previously when he has had set backs.


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