Skip to main content

Depressed Again

4ml prozac, 1/6 Clonidine, probiotics (no more antibiotics until Sunday) 1/2 magnesium

Ewen was miserable all day and wouldn't go swimming at his Grandma's house when she picked him up. Tonight going to sleep he had no tics but he said that he was anxious and depressed and wanted to break free from all of this. He was on the verge of crying which is very unusual for him. It broke my heart. We are both tired of the highs and lows but he is the one living it.  And he is so young it's not fair.

Mike and I talked about it and maybe we should put the Prozac up again since the tics have gone. We feel so lost with all of this. It was like he was cured for 2 weeks and now he is sick again, even though he is still taking the Zithromax.

He has his class trip and soccer tournament coming up in 2 days. I hate that he will be away from home  for 4 days when he isn't in good shape.

Comments

Popular posts from this blog

PANDAS Flare - My Oldest, Phenibut and Hydroxyzine

 We joined an online doctors group out of Colorado that specialized in PANS/PANDAS. My youngest is doing great with their protocol and she is the reason we joined. My 18-year-old with autism joined and after we got rid of her gut parasites she got very anxious. Then they gave her prednisone and she lost her mind. Now almost 3 weeks post-prednisone we are still sludging through a frightening mess of anxiety, depression and OCD the wasn't there before. I have it too now since it has been so awful with my oldest. I have to take anxiety meds to cope and I can't sleep at night after the hydroxyzine wears off. I'm in worse shape than she is, but mine is situational where hers is medical. To keep her comfortable I give her  8am 50 mg hydroxyzine and 500 mg phenibut 1pm 25 mg hydroxyzine and 250 mg phenibut 6pm 25 mg hydroxyzine and 250 mg phenibut I intersperse valerian calm drops and cortisol manager supplements between the doses. And then I pray it holds until bed time since tha...

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal o...

11-Year-Old Daughter Now Struggling

 Now my 11-year-old daughter has PANS. My son, Ewen, who I started this blog about a few years ago is doing great. He still has Zithromax when he has flares but does amazing on Zithromax and is back to baseline while taking that. He's happy and social with lots of friends, and doing very well with his online schooling.  My youngest though, she is 11 and she is suffering badly. This is what I gave her today: Morning Valtrex (for mono.. Epstein Barr) Vitamin C Fish oil lipothiamene Evening Zithromax 250 1/2 a Zyrtec 1.5mg melatonin disolvable 7 mg fluoxetine (She was on 5 and I'm working on moving her up to 10mg) She had been taking another antibiotic, I'm blanking on the name. It wasn't augmentin because she is allergic to that. Maybe Cefalexin? But anyway, I took her off that and put her back on Zithromax tonight because she is tanking and I'm scared. I'll call her pediatrician tomorrow and make sure she is on board with the switch. My DD is feeling stuck and wa...