Skip to main content

Sunday Night, May 15th Day 20 of Zithromax

(Morning probiotics, 4ml Prozac at 4pm, 250mg Zithromax at 4pm, 1/8 Clonodine and more probiotics at 8:30pm, 1/2 magnesium 8:30pm)

It has been a strange few days. For a wile there after Ewen started taking the antibiotics I thought he was cured. But over the past few days he seemed to become dissatisfied and antsy again, using screens to  escape and rocking back and forth on chairs. Tonight he was grumpy and wanted to be on his computer all day. We packed up our dinner in a picnic basket at ignoring his protests, the 5 of us went to the park nearby our house. We had dinner on the picnic blanket and he perked up a lot. Then some of our friends came to join us...something we kept a secret because I knew he would protest about it. But when they arrived he was happy to see his friend, Kevin. They have been friends for years but Ewen is very picky about his time with Kevin as he can be "annoying". But they had a fantastic time together, playing soccer and running around the park.

When we got home he seemed calmer and happier and when he went to bed to fall asleep he huffed once...just once. He kicked and flexed his foot once...and he wasn't swishing saliva in his mouth for the first time since this all happened. So even though his mood and jitteriness seems to be coming and going, his tics consistently seem to be getting better.

Tonight he finished his 20 days of 250mg Zithromax every day and now he will take 500mg once a week starting next Sunday.

I just want his joy to stick around. Am I missing something? Am I doing something wrong?

Comments

Post a Comment

Popular posts from this blog

Still Chugging Along

It has been almost a month now since the terrible effects of the prednisone.   This morning I gave 50 mg hydroxyzine and 500mg of phenibut and she still said she wasn't feeling great at 11:30am. So I gave her 3 droppers of Valerian Calm, which seems to offer a small boost of happiness sometimes.   I stopped her 5HTP and replaced it with 10mg of fluoxatine. But yesterday she said she was having a hard time peeing. So if that happens again we will have to re-evaluate.   After she is comfortable on an SSRI I want to start the minocycline antibiotic, but I don't want to do that until I get her SSRI support up incase the antibiotic makes her feel worse I read minocylcine can have negative psychiatric effects for some people). I have maxed out her supports with the phenibut and the hydroxyzine and have nothing left to give if the minocycline does something weird neurological too.  So to support myself, I took 20mg of fluoxatine (prozac) last night and feel w...
Post a Comment
Read more

Today's Basics and a Few Blessings

(Fish oil, probiotics, 4ml prozac, melatonin) Ewen did better today than the past two. He was just a little twitchy going to sleep and was able to hang out at Starbucks this afternoon without begging for a screen to look at. I told him I thought he had lost the ability to entertain himself so he said he was going to try. I told him last night that to go to sleep you have to be calm and let yourself think and then fall asleep. I said to make sure to keep Trash (what he calls his anxiety and OCD) out of it and he agreed. He still needs me to sit in there every night while he falls asleep. So I sit in his bean bag and play Clash Royal on my phone. Today he did well overall I think. I also wonder if it is because we are on the 3rd day after taking 500mg of Zithromax? He was huffing a bit today though, but not all day long and mostly when he was playing video games on his computer. I am still taking Prozac too and it makes me very sleepy. I could sleep all day. It is very hard to get ou...
Post a Comment
Read more

Out of the Hole

( 4ml Prozac, fish oil, 1/2 magnesium, probiotics, 1mg melatonin) Today Ewen went to a birthday party a couple of hours from home and had a lot of fun. He hung out with his dad a lot today which is what he used to do before he got sick. When he got sick he completely switched from Mike to needing me 24/7. He was not interested in hanging out with Mike. Daddy was all about watching soccer, playing soccer, enjoying everything that Ewen was good at and going out and having fun. Mommy was there to make sure he was feeling OK. So he switched from Mike to me. I realized this morning as Mike got up early to get Ewen's soccer stuff together and go to the store to get a present for the party, that he was taking over his old role as Ewen's care taker. I like that because Ewen has to be so active all the time that I don't have time to spend with the girls. So if Mike focusses on Ewen with his crazy social life and activities, I can focus on the girls and everything else. It was re...
Post a Comment
Read more