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Good Day Good Summer - And My Oldest

(Just under 4ml prozac)

Ewen has been doing fantastic. He has been hanging out with my sister and her family and talking and engaging with them. He has gone in the pool several times at his own will. He fell asleep on his own tonight and said that he felt rested and happy to fall asleep. I love that. His facial tics ( new nose twitch too) were in full form tonight. But he didn't huff. Maybe he traded the huffing for the nose twitch.

My oldest (age 13) is going to a girls indie music camp this week. It is from 9am-5pm and on Monday when I picked her at 5pm up she started sobbing in the car and said she didn't know why. She said she loved it  but it was too long. I guess it was too much because she had to socialize for 8 hours (she has autism) and that was a bit much for her. Then she cried while trying to go to sleep at bed time and cried again at 4am. She was so depressed that I had to sit up with her at 4 and I got out her old baby books like Goodnight Gorilla and Goodnight Moon. We looked at the beautiful pictures and I very much enjoyed sharing the books with her again like when she was very little. It calmed her down a lot. She said she wanted to come in my bed so Mike was booted on the to the couch and she fell asleep in the early morning next to me, but only after I told her that we would relax in the morning, have a nice breakfast and go to music camp after lunch. There was no way she could go the full day of camp on 4 hours of sleep.

So we both slept in then I took her to camp at about 1pm. She cried a little in the car on the way there but walked in the door with confidence. I talked to one of the counselors who was super understanding and said that I could pick up Ada at lunch tomorrow then bring her back two hours later to finish the day. That will be perfect and we will do that tomorrow for sure.

 When I picked her up this afternoon I was so worried but she came out so happy and excited. She said she made 2 new friends and that one of the girls wants her phone number! So I'm glad I encouraged her to keep going even though it was difficult. Sometimes you need to quit and move on, and sometimes you need to slog it out, even if it is really hard. This was a situation where the girls and the camp counselors were really nice and good people. No one was bullying her. Her differences and self expression was celebrated here. So I knew she needed this camp to have some social interaction beside the Sims video game. She needed to talk to real teenagers, not Sim ones. And this evening she was happy at home, lots of smiles and she fell asleep calmly tonight. What a relief.

It's hard being a mama to such sensitive kids but kind of amazing too.

Today I cleaned the whole house and mopped the floors. Mike made a pasta dinner and my sister and her family came over. We had a really nice time hanging out with them. Her son and my little one built a train track in the living room and brought the doll house out to make a "town". Ewen had been so sweet to his 3 year old cousin. I love seeing that.

Goodnight.

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Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences.  We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal of an