Skip to main content

Good Day Good Summer - And My Oldest

(Just under 4ml prozac)

Ewen has been doing fantastic. He has been hanging out with my sister and her family and talking and engaging with them. He has gone in the pool several times at his own will. He fell asleep on his own tonight and said that he felt rested and happy to fall asleep. I love that. His facial tics ( new nose twitch too) were in full form tonight. But he didn't huff. Maybe he traded the huffing for the nose twitch.

My oldest (age 13) is going to a girls indie music camp this week. It is from 9am-5pm and on Monday when I picked her at 5pm up she started sobbing in the car and said she didn't know why. She said she loved it  but it was too long. I guess it was too much because she had to socialize for 8 hours (she has autism) and that was a bit much for her. Then she cried while trying to go to sleep at bed time and cried again at 4am. She was so depressed that I had to sit up with her at 4 and I got out her old baby books like Goodnight Gorilla and Goodnight Moon. We looked at the beautiful pictures and I very much enjoyed sharing the books with her again like when she was very little. It calmed her down a lot. She said she wanted to come in my bed so Mike was booted on the to the couch and she fell asleep in the early morning next to me, but only after I told her that we would relax in the morning, have a nice breakfast and go to music camp after lunch. There was no way she could go the full day of camp on 4 hours of sleep.

So we both slept in then I took her to camp at about 1pm. She cried a little in the car on the way there but walked in the door with confidence. I talked to one of the counselors who was super understanding and said that I could pick up Ada at lunch tomorrow then bring her back two hours later to finish the day. That will be perfect and we will do that tomorrow for sure.

 When I picked her up this afternoon I was so worried but she came out so happy and excited. She said she made 2 new friends and that one of the girls wants her phone number! So I'm glad I encouraged her to keep going even though it was difficult. Sometimes you need to quit and move on, and sometimes you need to slog it out, even if it is really hard. This was a situation where the girls and the camp counselors were really nice and good people. No one was bullying her. Her differences and self expression was celebrated here. So I knew she needed this camp to have some social interaction beside the Sims video game. She needed to talk to real teenagers, not Sim ones. And this evening she was happy at home, lots of smiles and she fell asleep calmly tonight. What a relief.

It's hard being a mama to such sensitive kids but kind of amazing too.

Today I cleaned the whole house and mopped the floors. Mike made a pasta dinner and my sister and her family came over. We had a really nice time hanging out with them. Her son and my little one built a train track in the living room and brought the doll house out to make a "town". Ewen had been so sweet to his 3 year old cousin. I love seeing that.

Goodnight.

Comments

Popular posts from this blog

Out of the Hole

( 4ml Prozac, fish oil, 1/2 magnesium, probiotics, 1mg melatonin) Today Ewen went to a birthday party a couple of hours from home and had a lot of fun. He hung out with his dad a lot today which is what he used to do before he got sick. When he got sick he completely switched from Mike to needing me 24/7. He was not interested in hanging out with Mike. Daddy was all about watching soccer, playing soccer, enjoying everything that Ewen was good at and going out and having fun. Mommy was there to make sure he was feeling OK. So he switched from Mike to me. I realized this morning as Mike got up early to get Ewen's soccer stuff together and go to the store to get a present for the party, that he was taking over his old role as Ewen's care taker. I like that because Ewen has to be so active all the time that I don't have time to spend with the girls. So if Mike focusses on Ewen with his crazy social life and activities, I can focus on the girls and everything else. It was re...

Friday, Day 5 Antibiotics - Another Good "Really Fun" Day

(7:45am probiotics, 4pm 4ml Prozac, 1 Zithromax, 8pm Clonodine-a very tiny 1/4, and probiotics) This morning we left the house early so we could go to Starbucks and get some hot chocolate before school. Ewen's carpool buddy liked that too. Ewen was in good spirits, then when we got to school I walked in the classroom with him to help him carry his stuff. One of his classmates said, "Ewen, do you have your book report?" Ewen: "When is is due?" Classmate: "Today!" So I went to his teacher and apologized that he hadn't done his book report and that he would do it this weekend. I thought about how we have a wedding all day on Saturday and he has an out of town game on Saturday, then another out of town game on Sunday. But I told her we would get it done. She said he could turn it in next Friday. He will have to get up in front of the class and present it so it is a big deal book report. He has been so spacy, filled with procrastination and avoi...

Still Chugging Along

It has been almost a month now since the terrible effects of the prednisone.   This morning I gave 50 mg hydroxyzine and 500mg of phenibut and she still said she wasn't feeling great at 11:30am. So I gave her 3 droppers of Valerian Calm, which seems to offer a small boost of happiness sometimes.   I stopped her 5HTP and replaced it with 10mg of fluoxatine. But yesterday she said she was having a hard time peeing. So if that happens again we will have to re-evaluate.   After she is comfortable on an SSRI I want to start the minocycline antibiotic, but I don't want to do that until I get her SSRI support up incase the antibiotic makes her feel worse I read minocylcine can have negative psychiatric effects for some people). I have maxed out her supports with the phenibut and the hydroxyzine and have nothing left to give if the minocycline does something weird neurological too.  So to support myself, I took 20mg of fluoxatine (prozac) last night and feel w...