Skip to main content

Luckiest Mother on the Planet

(4ml prozac)

My boy is joyful again. He is happy and content and he can fall asleep at night by himself. He still has some mild tics but he barely huffs anymore and even his nose twitch was barely there today. He was like his old self, before all this started. I have not given him more antibiotics in the hopes that we can back off from them now.

Yesterday the 5 of us went to the beach and a family that we didn't really know was there with some of our friends. A father that I had just met commented on Ewen who had been boogie boarding for the past hour and he said,"That kid really loves the water eh?"

I thought to myself that it was only a few months ago that "that kid" thought he was going to drown in the bath and wouldn't even go out onto my parent's patio because it was too near the pool. He was even afraid of rain.

But yesterday he was in the big waves of the ocean all day. Today he swam in the pool and played water soccer with a friend for 2 hours.  It was a friend he wouldn't see when he was sick and for a long time afterwards. But he was fine to hang out with him today because he is happy again and can go with the flow. That is the kind of personality that has defined Ewen since he was a baby.

I wish I would have known on Christmas day, that by the middle of summer he would be FINE. That would have made it easier. But we don't know our futures, we can only work hard to try and make things better. I read once that life is the good part between tragedies. So now that we have the good part again I need to live my life again, not in fear but to get rid of "trash" (what Ewen calls anxiety) and to embrace normalcy. Fear became such a usual emotion that it feels like now I am the one who has to shed it and just live...like how Ewen is now. I am getting there. I count my blessings. I look at our tiny house and realize how lucky we are to have a roof over our heads and how beautiful our little house is. My kids are seriously hard work but they are amazing in a sparkly mind-blowing way so it is worth it. Mike and I always find our way back to each other when we get lost and I am so grateful to have my son back. I optimistically described this blog from day one, as the story of our journey back to some sort of happy normalcy. I didn't actually know if we would ever get there. But we did, and Ewen lead the way. I know many people loose their kids to illness and tragedy. But we got Ewen back. It isn't lost on me how fortunate we are. I am the luckiest mother on the planet because Ewen is finally Ok.


Comments

Popular posts from this blog

Still Chugging Along

It has been almost a month now since the terrible effects of the prednisone.   This morning I gave 50 mg hydroxyzine and 500mg of phenibut and she still said she wasn't feeling great at 11:30am. So I gave her 3 droppers of Valerian Calm, which seems to offer a small boost of happiness sometimes.   I stopped her 5HTP and replaced it with 10mg of fluoxatine. But yesterday she said she was having a hard time peeing. So if that happens again we will have to re-evaluate.   After she is comfortable on an SSRI I want to start the minocycline antibiotic, but I don't want to do that until I get her SSRI support up incase the antibiotic makes her feel worse I read minocylcine can have negative psychiatric effects for some people). I have maxed out her supports with the phenibut and the hydroxyzine and have nothing left to give if the minocycline does something weird neurological too.  So to support myself, I took 20mg of fluoxatine (prozac) last night and feel w...

Today's Basics and a Few Blessings

(Fish oil, probiotics, 4ml prozac, melatonin) Ewen did better today than the past two. He was just a little twitchy going to sleep and was able to hang out at Starbucks this afternoon without begging for a screen to look at. I told him I thought he had lost the ability to entertain himself so he said he was going to try. I told him last night that to go to sleep you have to be calm and let yourself think and then fall asleep. I said to make sure to keep Trash (what he calls his anxiety and OCD) out of it and he agreed. He still needs me to sit in there every night while he falls asleep. So I sit in his bean bag and play Clash Royal on my phone. Today he did well overall I think. I also wonder if it is because we are on the 3rd day after taking 500mg of Zithromax? He was huffing a bit today though, but not all day long and mostly when he was playing video games on his computer. I am still taking Prozac too and it makes me very sleepy. I could sleep all day. It is very hard to get ou...

Based Out of Love

(first night at 5ml's of prozac, went up from 3ml's) When I apologetically mentioned to Amira's tutor that I find my moods tend to be dictated by how my children are doing these days, she told me that was to be expected and that I was too hard on myself and gosh she'd like to send me to Hawaii for a vacation. Her house is near our's. I love that we can walk there and her living room is like an oasis. There is no great wealth in her living room. There is a stylish and comfy couch with some bright cushions. Her windows are the old kind but they are huge. She opens them up and they let in golden morning light and the sheer curtains blow gently in the breeze. She always has one candle burning so when we walk in and put Amira's books down take our shoes off and take off our coats, something smells really good. She plays a Pandora station of music that is both soothing and uplifting. I'm so glad that Amira gets to go there for a few hours of the day. She ...