Skip to main content

Out of the Hole

( 4ml Prozac, fish oil, 1/2 magnesium, probiotics, 1mg melatonin)

Today Ewen went to a birthday party a couple of hours from home and had a lot of fun. He hung out with his dad a lot today which is what he used to do before he got sick. When he got sick he completely switched from Mike to needing me 24/7. He was not interested in hanging out with Mike. Daddy was all about watching soccer, playing soccer, enjoying everything that Ewen was good at and going out and having fun. Mommy was there to make sure he was feeling OK. So he switched from Mike to me. I realized this morning as Mike got up early to get Ewen's soccer stuff together and go to the store to get a present for the party, that he was taking over his old role as Ewen's care taker. I like that because Ewen has to be so active all the time that I don't have time to spend with the girls. So if Mike focusses on Ewen with his crazy social life and activities, I can focus on the girls and everything else.

It was really nice to see that Mike taking care of Ewen's activities was the norm again.

Ewen did a bit of huffing today but not much. He huffed a bit while falling asleep and twitched his butt a lot which he always does now when he falls asleep. The strangest thing is that after he falls asleep his whole body twitches like crazy and it frightens me a bit and I hope that there is nothing larger wrong. So I will talk to his doctor about it next time I see her.

He seems happy and relaxed. I'm not looking forward to school since I don't want the stress to trigger anything and have the PANS flair up again. I decided to keep him on the Prozac through the summer so he has some help when he starts middle school.

He didn't do much if any nose twitching today which was good. He does well when he exercised and hangs out with friends rather than playing video games all day...go figure. He doesn't need them anymore. He still likes to have a lot of distraction but it isn't a NEED based thing so much anymore. He just likes  to watch his Youtube videos and play his Agar.io and Slitherio or whatever it is called.

Yesterday we went tubing down the river about 45 minutes away from our house and the water was crystal clear and cold. The crickets and frogs were singing loudly in the trees and the sun was bright overhead. The sky was the kind of blue you see in paintings with dotted clouds that actually moved even though they barely seemed real. We went with two families and Ewen had a fantastic time.

I remember at Christmas when he was in terrible terrible shape. When I see him swimming and having fun and GENUINELY having fun (for a while there he said he had a good day then retract it when I pressed him about it). I love that he is feeling good again.  I absolutely love it and I am so glad that we are not in that hole anymore that we were in when I started this blog.

Comments

Popular posts from this blog

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal o...

Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences.  We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back...

Titrating Prozac (Really Low and Slow)

Ewen is in his bedroom editing an Agario video. Since he is doing video editing I'm calling it a part of homeschool. I also have some work for him to do on the dining room table this afternoon. We have his first acupuncture appointment this afternoon. It is going to cost $90. I'm not sure if it will do anything to help since today was our 2nd day of Prozac and I am sure that meds interfere with natural and holistic treatment. But we will try. Maybe it will help? I'm giving Ewen barely any Prozac this week to start off with. It comes in a liquid and we are supposed to be giving him 1 ML...which apparently is very low. But yesterday I gave him .1 ML, to get his body used to it. And today I gave him a smidge under .2 ML's. There is no reason not to titrate it so low. He is so ultra sensitive that I want to give his body time to get to know the drug before we put it up enough to make a difference. He did so badly on the Lexapro that I think this is the right way t...