1/4 MG Guanfacine Worked

Ewen did well with his first 1/4 mg of Guanfacine last night. Just on his first dose he seemed to huff less. We went out to eat at our favorite pizza restaurant that we finally were able to start going back to on Friday nights. We had to order in for a couple of months while his anxiety was too bad for him to go out and sit at a restaurant. Also he went to sleep on his own last night for the first time since this all started in December, and he slept through the night except to go to the bathroom at 4am but he said he went right back to sleep after that.

This morning he is huffing away while watching Curious George with his little sister. I gave him another quarter guanfacine and am hopeful it will help him again this morning?

I looked up Guanfacine on Wikipedia and the side effects are alarming. I'm glad we are starting with a tiny dose...not sure why that isn't the norm.

Comments

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ........... to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal o...

Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences. We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back...

Titrating Prozac (Really Low and Slow)

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10-Year-Old with Panic (PANS)

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