Skip to main content

Need To Change Course

We are in the middle of 9 weeks of Prozac and we pulled Ewen's dosage down to 4ml's from 5 because 5ML's made his tics worse and a new one developed. He was happiest at 5 but seeing him develop new weird behaviors and never be able to relax makes us feel like we shouldn't keep him on Prozac.

He had tics before though and I know that Prozac doesn't help with tics but there is a chance it isn't causing these, although we did see a substantial increase in jittery and jerky behaviors when he went up to 5ml's, especially after 4 days. We don't know what to do. Here are our options

1. keep him at 4ml's and see how he does
2. take him off the medicine and hope he does OK
3. switch him to Zoloft
4. add a tic medication
5. look into and ask about rTMS?
6. take the dose slowly back up to 5 and see if going slow helps
7. stay at 4 ml's and add antibiotics again incase it is PANDA's

The only reason I wrote option number 6 is because he was happiest then and he seems more troubled and dissatisfied again now that we have brought the dosage down.

I looked back at my notes about his medication and how he did over the past couple of month and he was in very bad shape before the prozac started working. And he was huffing before we even gave him prozac. It seems that the Prozac has made him better and aggravated his tics. The worst thing is that he can't relax. At night his is a mess and huffs and flexes his muscles, moves his legs around and taps them again the bed and swishes saliva in his mouth. He does this until he finally just passes out asleep and all the huffing stops. He is never able to relax and go to sleep. He says it is physically impossible to stop moving and when I asked if it was like this at all before all this happened he said, no.

I wish I knew what to do. I wan to ask his psychiatrist but I worry that he tried to prescribe Ewen a hard core antihistamine when he was having some hives, instead of just advising to do Benadryl which has so much fewer side effects. So I feel that he is a bit too pill happy. Also he told me on the phone that it isn't true that it takes Prozac up to 8 weeks to work and wanted to know where I got that from. The answer is all the other doctors, nurses and online articles out there.

I think that maybe we should switch to Zoloft but I am hesitant because I hated Zoloft. It helped me for a while but it did weird things, like I had muted emotions, I got the yawns when I exercised, then when I tried to take it again in my 40's I got headaches every day then it gave me a horrible urge to clench my jaw all the time. It also messed with my memory. So I don't want to put my 11-year-old son on it. But at the same time it got me out of a hole that I didn't want to be in and I would still choose Zoloft over that hole. I don't think I want to give him Zoloft. I don't know. I do know that he mustn't be back in that hole again.

Comments

Popular posts from this blog

Friday, Day 5 Antibiotics - Another Good "Really Fun" Day

(7:45am probiotics, 4pm 4ml Prozac, 1 Zithromax, 8pm Clonodine-a very tiny 1/4, and probiotics) This morning we left the house early so we could go to Starbucks and get some hot chocolate before school. Ewen's carpool buddy liked that too. Ewen was in good spirits, then when we got to school I walked in the classroom with him to help him carry his stuff. One of his classmates said, "Ewen, do you have your book report?" Ewen: "When is is due?" Classmate: "Today!" So I went to his teacher and apologized that he hadn't done his book report and that he would do it this weekend. I thought about how we have a wedding all day on Saturday and he has an out of town game on Saturday, then another out of town game on Sunday. But I told her we would get it done. She said he could turn it in next Friday. He will have to get up in front of the class and present it so it is a big deal book report. He has been so spacy, filled with procrastination and avoi...

Out of the Hole

( 4ml Prozac, fish oil, 1/2 magnesium, probiotics, 1mg melatonin) Today Ewen went to a birthday party a couple of hours from home and had a lot of fun. He hung out with his dad a lot today which is what he used to do before he got sick. When he got sick he completely switched from Mike to needing me 24/7. He was not interested in hanging out with Mike. Daddy was all about watching soccer, playing soccer, enjoying everything that Ewen was good at and going out and having fun. Mommy was there to make sure he was feeling OK. So he switched from Mike to me. I realized this morning as Mike got up early to get Ewen's soccer stuff together and go to the store to get a present for the party, that he was taking over his old role as Ewen's care taker. I like that because Ewen has to be so active all the time that I don't have time to spend with the girls. So if Mike focusses on Ewen with his crazy social life and activities, I can focus on the girls and everything else. It was re...

Still Chugging Along

It has been almost a month now since the terrible effects of the prednisone.   This morning I gave 50 mg hydroxyzine and 500mg of phenibut and she still said she wasn't feeling great at 11:30am. So I gave her 3 droppers of Valerian Calm, which seems to offer a small boost of happiness sometimes.   I stopped her 5HTP and replaced it with 10mg of fluoxatine. But yesterday she said she was having a hard time peeing. So if that happens again we will have to re-evaluate.   After she is comfortable on an SSRI I want to start the minocycline antibiotic, but I don't want to do that until I get her SSRI support up incase the antibiotic makes her feel worse I read minocylcine can have negative psychiatric effects for some people). I have maxed out her supports with the phenibut and the hydroxyzine and have nothing left to give if the minocycline does something weird neurological too.  So to support myself, I took 20mg of fluoxatine (prozac) last night and feel w...