Skip to main content

Wednesday



It's interesting because we have had a day much free of huffing. It has been really nice to have him just be chill and himself. But now, at 3:30 he is starting to huff a bit again.

This morning Ewen went with his sister over to the tutor's house. She has a lovely small house with a living room that is full of the morning sun and this morning the air had a lovely breeze coming through her windows. Ewen brought his book and he told me later that her living room was the best place in the world for reading a book.

It was fantastic to have a couple of hours to work and not feel bad because I'm not hands on homeschooling him. When he came home at lunch time we went for a bike ride around the historic neighborhood nearby. Then I called DH and he and Ewen rode downtown and ate lunch at a restaurant. Then he rode Ewen home afterwards. At home he went to his computer to watch Agar.io videos for half an hour for his lunch break. And when he came out of his room he looked a bit dazed. I told him that I didn't think that watching his youtube and Agario videos during the school day did anything for him. I said that I thought he should stay away from them until after our school day was done and he agreed. He did some more reading at home and will do a book report when he is done. Then on the way to pick up his sisters he watched some Brain Pop movies on my phone and that was his history lesson. Brain Pop videos are an awesome teaching tool.

Now the school day is over but he is sitting on the couch, reading and not huffing. I love the sound of the wind chime and the breeze outside. I have the front door open so we can see into the front yard and the Azaleas are blowing around in the breeze. The sun comes out and then goes behind a cloud quickly...every minute or two, because the little clouds are racing across the sky. He huffed again when he just spoke to me but at least it isn't all the time today like it was yesterday.

His sister had another very good day with no anxiety.

OK, bye for now :)

Comments

Popular posts from this blog

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal o...

Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences.  We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back...

Titrating Prozac (Really Low and Slow)

Ewen is in his bedroom editing an Agario video. Since he is doing video editing I'm calling it a part of homeschool. I also have some work for him to do on the dining room table this afternoon. We have his first acupuncture appointment this afternoon. It is going to cost $90. I'm not sure if it will do anything to help since today was our 2nd day of Prozac and I am sure that meds interfere with natural and holistic treatment. But we will try. Maybe it will help? I'm giving Ewen barely any Prozac this week to start off with. It comes in a liquid and we are supposed to be giving him 1 ML...which apparently is very low. But yesterday I gave him .1 ML, to get his body used to it. And today I gave him a smidge under .2 ML's. There is no reason not to titrate it so low. He is so ultra sensitive that I want to give his body time to get to know the drug before we put it up enough to make a difference. He did so badly on the Lexapro that I think this is the right way t...