Skip to main content

Where Are We?



I'm still really confused about where we are. I know that Ewen's anxiety seems to be lower but he is still not comfortable in his own skin. He can't sit on the couch without doing a forward roll or winding his limbs into some sort of a pretzel and making squawking noises. He is very focussed on what he wants to do and it seems like his number one priority is to make sure that he is doing something where he feels comfortable and mentally stimulated.  I can't tell if the Prozac is making him antsy and uncomfortable or if he would be that way anyway without it. I remember when we started taking it I was so ready for some help. We haven't come to the 4 week mark yet but it confused me when his Dr. said that he Prozac hould start helping after a couple of weeks. Before him, the other doctors said up to 5 weeks when he tried Lexapro, and that is what I have read online about SSRI's too. So I'm wondering if our wonderful doctor is not so so wonderful. Or maybe the Prozac isn't right for him...or should we wait for 6 weeks to see if it starts working? I read online that it can take 16 weeks. That seems a bit outrageous to me.

My biggest worry is that he can't sit still at all. I don't know how I can take him back to school if he has to do back bends when he sits down and is not in front of a video game. I don't understand what is happening to my son. It reminds me a bit of when his older sister regressed into Autism at age 2. She just changed from happy healthy and engaged to her own world and agitated. Now here we are with Ewen at 10, changed into someone with major ADD symptoms.

We are supposed to go to a Super Bowl party today at our friends house and he has started protesting already.

Now for the good side of it all. He woke up this morning in a good mood and has been relatively happy all day. He has been talking to his sisters and been nice to them. The bad part is the huffing and the saliva smacking in his mouth that happens when he is not looking at a screen. He has fought to look at screens all day today and DH finally got him out onto he street to play soccer for a bit. He was originally going to play a tournament game in Jacksonville today but that was cancelled due to rain.

Bye for now.
-Me.

Update: He did very well at the Super Bowl party. He played darts with the boys and ate the nice spread. When I asked him if he was "bananas" which is our code word for anxious, he said, "no." So we were able to stay for a nice amount of time and have fun. When I asked him that night if he had fun at the party he said no. But I saw him doing fine and that was good. One day in the future he will actually tell me he enjoyed something social again.

Comments

Post a Comment

Popular posts from this blog

Still Chugging Along

It has been almost a month now since the terrible effects of the prednisone.   This morning I gave 50 mg hydroxyzine and 500mg of phenibut and she still said she wasn't feeling great at 11:30am. So I gave her 3 droppers of Valerian Calm, which seems to offer a small boost of happiness sometimes.   I stopped her 5HTP and replaced it with 10mg of fluoxatine. But yesterday she said she was having a hard time peeing. So if that happens again we will have to re-evaluate.   After she is comfortable on an SSRI I want to start the minocycline antibiotic, but I don't want to do that until I get her SSRI support up incase the antibiotic makes her feel worse I read minocylcine can have negative psychiatric effects for some people). I have maxed out her supports with the phenibut and the hydroxyzine and have nothing left to give if the minocycline does something weird neurological too.  So to support myself, I took 20mg of fluoxatine (prozac) last night and feel w...
Post a Comment
Read more

Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences.  We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back...
4 comments
Read more

All 3 Doing Well

Ewen: 500mg Zithromax 3x a week, less than 1/4 Clonodine, 1.5mg melatonin, Vitamin D3, probiotics, magnesium, fish oil, 16mg Prozac 8-year-old sister: 3mg Zithromax daily, magnesium, half an Oncolplex (broccoli sprouts supplement), 1mg melatonin, magnesium, iron, D3, probiotics 14-year-old sister - 250 mg Zithromax daily, magnesium, Oncolplex, 1.5 mg melatonin, magnesium,  probiotics, D3, fish oil, 20mg Prozac Ewen and his 8 -year-old sister are both doing really well now. My youngest has her energy back, no longer says "I fee bad!" all day long...in fact she never says it at all. She sleeps through the night more often and is much happier. She is still a grump, but in normal portions with lots of happiness and giggles in between the grumps. She is back to some kind of normal. The story here though is my 14-year-daughter with autism. We started out giving her pretty massive doses of Zithromax and it was just too much for her. She got very emotional and exhausted too. ...
Post a Comment
Read more