Skip to main content

Sleep Time

I'm sitting with him on his bed while he falls asleep and all his mouth saliva noise and lip smacking and huffing is driving me insane. He is trying to fall asleep. I suppose his anxiety is this much because he was allowed to fall asleep an hour after his bed time because his class play (that he left behind when he left school) was tonight and he agreed to meet his class for ice cream after the play. I thought this was a big step forward so I let his bed time slide a little . I wasn't sure about the timing since we put his Prozac up. Then when we got there I let him order his ice cream and he came back with a monster chocolate sunday with gummie worms and mnm's among with the chocolate and whipped cream. Sugar is not good for anxiety or cut bacteria and he already had a ton of sugary soda at the faire today. So I was dismayed when I saw what he came back with. I ended up taking it away from him after he ate half of it. That was fun to do in front of the other parents.
I'm hoping 10mg for the next few days will help and not just give him terrible anxiety. I'm sure a late bed time and a mound of sugar and chemical colors didn't help either. He used to be allergic to yellow #5 when he was little. So once again I feel like a shitty parent. He's finally falling asleep and it is after 11pm. That's my day over now too. No me time tonight.

Comments

Post a Comment

Popular posts from this blog

The Chair of the Pediatric ER Wrote Back!!!!!

Ms. ....... Thank you very much for bringing your son’s case and experience to our attention. First of all, I hope that Owen is still doing much better. I absolutely understand how devastating this could be in terms of a missed opportunity to appropriately diagnose. I have to say that in reading your email and updating my knowledge about the condition, I could see how it may be quite difficult to make a diagnosis accurately in an Emergency Department setting and I could see why things occurred in the manner in which they did. That said, I am very sorry that we let you and your family and your son down in this way. Our Pediatric Emergency Department are staffed by a group of very expert pediatric emergency medicine specialists trained in some of our nation’s leading teaching institutions who I was able to recruit here to ...........  to take care of our community. I know that the fact that we were not able to expeditiously diagnose your son’s condition caused a great deal o...
2 comments
Read more

Spring Break 2017 Update

4ml Prozac, 500mg Zithromax 3x a week, 1.5 mg melatonin, less than a quarter of Clonidine Ewen is doing well. Right now he is vacuuming and mopping the whole house (all 850 square fee lol) To earn an hour of screen time playing Overwatch. We have had a few hiccups. He got in major trouble in school for hacking into the computer and writing silly things on a class web page. He said he didn't realize he would get a referral and get in so much trouble since he wasn't hurting anyone and would never bully. He also dropped his grades because he was too busy having fun with his friends. So Mike and I had a meeting with his teachers. He now has a 504 plan since he has had lots of absences.  We are paying close attention so that we can make sure he completes his assignments. Last month he was having trouble with tics (mostly huffing) and anxiety and so his pediatrician put his Zithromax up to 500 mg every day for a full week. That completely helped and was amazing to get him back...
4 comments
Read more

PANDAS Flare - My Oldest, Phenibut and Hydroxyzine

 We joined an online doctors group out of Colorado that specialized in PANS/PANDAS. My youngest is doing great with their protocol and she is the reason we joined. My 18-year-old with autism joined and after we got rid of her gut parasites she got very anxious. Then they gave her prednisone and she lost her mind. Now almost 3 weeks post-prednisone we are still sludging through a frightening mess of anxiety, depression and OCD the wasn't there before. I have it too now since it has been so awful with my oldest. I have to take anxiety meds to cope and I can't sleep at night after the hydroxyzine wears off. I'm in worse shape than she is, but mine is situational where hers is medical. To keep her comfortable I give her  8am 50 mg hydroxyzine and 500 mg phenibut 1pm 25 mg hydroxyzine and 250 mg phenibut 6pm 25 mg hydroxyzine and 250 mg phenibut I intersperse valerian calm drops and cortisol manager supplements between the doses. And then I pray it holds until bed time since tha...
Post a Comment
Read more